Thanks for all the suggestions and supportive comments. Luckily my daughter has received amazing care at BC Children's hospital. They are just perplexed and I am trying to find ideas and suggestions to bring forward to them. Will keep on keeping on and attempt to get my daughter some reprieve...
My daughter has been diagnosed with severe refractory Crohn's disease since 2011. Medications have not given her reprieve and she has not experienced remission. She has not been in school for 4 years. Has been in hospital or home bound. She has had a colectomy and has an ileostomy. None of...