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Crohn's Disease Forum

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  1. M

    17 years old, Stoma reversal, scared.

    Hi, I had my reversal 8 weeks ago today and it was a lot easier than my first operation, as shamrock said don't be scared and enjoy bottom burping again!! Just take things at your own pace, my mind was willing but my body wasn't ready. I had my post operation appointment today and got the all...
  2. M

    Reversal operation and maintenance medication questions

    Well, Russell has gone!! I had my operation last Monday and I am now at home recovering. The surgeon managed to do it keyhole but I have 5 holes in my stomach as they couldn't push my stoma back in easily. When I woke up I felt so relieved that I was bag free it felt really strange. Day 1 was...
  3. M

    Reversal operation and maintenance medication questions

    Well some good news, I had a call from my surgeon they are operating on Monday, a bit nervous but also excited. They are putting me back on salofalk after the operation which I am glad about. No symptoms yet so hopefully in remission. Wish me luck
  4. M

    Upcoming Reversal

    Glad you are home and taking it easy. I had a surprise call from the hospital on tuesday saying do I want my operation this Monday!! I said yes so I have been for my ore assessment today and got the all clear for surgery. I am excited but also a little nervous. I hope I see the results you...
  5. M

    Upcoming Reversal

    I am seeing the nurse to or row to discuss meds. I don't know if it will be keyhole or open yet, he is going to try keyhole. My last surgery was open and I have a big scar so I hope they don't have to re open it. I have only just got back into work so I hope I am not off too long this time...
  6. M

    Upcoming Reversal

    Hi, I had a call from my hospital today and they have offered me the chance to have me stoma reversed on Monday, short notice I know but I have jumped at the chance. I have had Russell since July and as it was an emergency it took a while to get used to the idea of having a stoma. I hope my...
  7. M

    Reversal operation and maintenance medication questions

    They have mentioned Aza, I know some people on it and they have seen great results but I am enjoying being medication free at the moment. I feel so well at the moment that I don't know if maintenance meds is the best option, but I will be guided by my surgeon. I see him on Wednesday this week...
  8. M

    Reversal operation and maintenance medication questions

    Hi, My name is Gina and i am due for surgery in November to have my illiostomy reversed and my surgeon has discussed going onto maintenance medication. I have had my bag (russell) for 3 months and it had taken a lot to get used to it but I am so glad I am having the operation to reverse it...
  9. M

    Cutting the stoma bag and a few other questions!

    I love my shower, it makes me feel 'normal' again and I also feel clean. If any leaks out in the shower I just out some bleach down. Good luck
  10. M

    3 Options

    Hi, I currently have a temporary illiostomy, due to be reversed in November. My surgeon has said he will put me on maintenance medication after the operation, I am not sure what it will be. I have reservations about taking any meds as I feel so well and I have lost a lot of weight (my previous...
  11. M

    Cutting the stoma bag and a few other questions!

    Hi, I use calomine lotion around my stoma, I suffered with a reaction to the make of bag and nothing was helping. My stoma nurse recommended it, so far in 9 weeks I have used a bottle. A someone has said, the moulded rings are good too because if the cut is not just right you can mould it to...
  12. M

    Stoma stitches

    I used calomine lotion on the areas that were sore, I tried all the medical wipes and powders that I was given but that was the only thing that did the trick. I have had mine for a few months now and you get used to the noises and quiet times. All the best.
  13. M

    Life after reversal so many questions...

    Thank you that makes good reading.
  14. M

    Life after reversal so many questions...

    I am scheduled in for having my reversal of my iliostomy in November and I have a few questions? I have had my temporary stoma (russell) since July, I hated it a first but now I have got into a routine it is more manageable. I still can't wait for the operation, i want to look normal again...
  15. M

    Crohns has ruined my year so far..

    Hi, I am currently on no meds but my surgeon says we need to consider maintenance meds. I think they will put me on aza. I just hope after the reversal I stay in remission. I am struggling with dry skin and concentration but I hope it is just down to the illiostomy and the major surgery I...
  16. M

    Crohns has ruined my year so far..

    I don't know really where to start but here goes... I was diagnosed with crohns 5 years ago and told it was in my small bowel, after scans and endless tests I was put onto salofalk. My symptoms seem to get better and I carried on. I didn't realise how I'll I was getting, no energy, felt like I...
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