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My turn now!

That was great to read through. Way to go!

Pool

I understand your concerns. My daughter was diagnosed in May, 2011. She is now on Remicade infusions and started 6- MP last week. her GI wants her on this regimen for a year. She has strictures, fistulars and an absess. Share your concerns with your GI doctor and talk about alternative...

Thanks Hi Kismet, Dusty and Jill, Thanks for the welcome. My daughter was diagnosed in May. We are not sure where the majority of her inflamation is, she was diagnosed primarily via lab work (CPR was 769 with elevated zed rate, platelet, and white count). She has had two c-scans but the...

Thank you both for sharing. I am so sorry to hear Arin that you were sick for 2.5 years. I wish you well and good luck with your current treatmenty regimen.

Hello everyone and thank you all for sharing. My daughter is recently diagnosed and while she is an adult - I am doing what I can to educate myself - I am so sorry that this horrible syndrome exists. I respect each any everyone of you for what you deal with each day, god bless.