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Adjusting diet alone is not enough to fight with crohns unfortunately. Or we didnt find the right diet to address it yet...

The worst thing to do is stopping medication without medical control. I'm sure you can find a treatment that suits you.

Yes you right, when you are well maybe you dont spend much time on a crohn's forum. However a lot of people here reported success on entyvio, while official data from studies show it's very effective (clinical remission) for like 50% of the patients. You can find data here...

Entyvio should be much less systemic compare to infliximab as it only prevent some white blood cell to be activated inside the bowel, while anti tnf such as infliximab modify the inflammation mechanism in all the body.

I'm having abdominal cramps and pain since yesterday with no diarhea so far but gas.. such annoying. Thought my diet was ok with low fiber food etc... it happent after i had a simple tuna steak for lunch. Hope it's just a moment. Had to take antibiotics last week for an infection, maybe it's...

I'd start with azathioprin as it's easier to take and also the doctor advice. no need of infusion, nor going to hospital every 4/8 weeks which is quite annoying..

Happent to me too when i was on a flare and on prednisone... i thoight it was because of pred though

unfortunately with this disease, you can have almost no symptoms with inflammation going on inside... that's why testing inflammatory markers like CRP or calpro is also very important as well doing scopes regularly.

That's great!

On aza you can have blood test every 3/4 months... it's fine. From my experience i've learnt it's important to follow good doctors advices, but you can choose to not take a medication if you dont want it...

Go see another doctor... you deserve a diagnosis and a treatment!

Why are you reluctant to take azathioprin? It takes almost no effort to take it... its a pill you take at home... ots relatively cheap... its quite effective... no need to go to hospital every other week to have an infusion in your arm etc...

There are no jobs for ibd people specifically. The most important is finding a job he likes,.. i'd say he could do anything. Even physical jobs. He'll find his way

What do you mean by vedolizumab trial? It's aproved by almost all the health agencies so i guess yes the classics 1 to 3 stage trials are finished. They always study the efficacy of it compare to other biologics or steroids i think... maybe in combination with other biologics too... you could do...

Hi hikerneil, Yeah you right it would be great if iron infusions only were the solution... What is your treatment now? I was in a similar situation 5 years ago with my hemoglobin that keep dropping every 2 months and i was scared of biologics so i was on azathioprin only... after my scopes...

Yeah i hope so. I did the last one last week, and next one will be in 3 weeks instead of 7.

By the way i went from every 4 weeks to every 8 weeks, not every 4months... and my calprotectin went up... :( wondering now it it's because i need it every 4 weeks or i stopped responding to entyvio..

Sounds good.

Ah yeah i also did at least 2/3 iron infusions over the next 2/3 month after the bleeding. I guess it helped a lot.

Yeah I was very weak too... and so anxious I would bleed again. Thank god all went well and i regained weight and energy after a month or 2...