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  1. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    What about Rifaximin? Seems a good treatment option too.
  2. G

    Heard from Doc today

    Hi guys , where can we find details on the CDED diet please?
  3. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    What would be an optimal level of vitamin D you think? I checked my levels this year and last year and they were around 35-40, so not low but not high... Regarding the GM-CSF i've found studies and trials... don't seem to be miraculous so far, but they probably need to work on it and find the...
  4. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    Very interesting points kiny. Waiting for our gastros to wake up then.. but in the meantime is there a natural/medicinal way to boost our immunity or macrophage activity?
  5. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    Is there any treatment we could already received from immunologists?
  6. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    https://www.medicalnewsbulletin.com/the-role-of-macrophages-in-the-treatment-of-crohns-disease/
  7. G

    Another Stricture

    Sorry you feel that way. The timing of the surgery around august seems perfect then. Hope you’ll feel great after it. I was also constantly anemic before starting 2 entyvio years ago. Thought inflammation was under control then as hemoglobin was great and pcr low, but aparently not. Hard to...
  8. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    I guess many scientists and doctors don’t agree with this theory, otherwise they’d suggest different therapies, right? Or they don’t event know about it??
  9. G

    Kind of Feel Like Dying

    Hi PinkThink, first of all welcome to this forum. You said you don't know anyone else with this disease, well here you are, you have find the right place to learn, share, and hopefully find some comfort and advices, anonymously and without judgements. I understand your pain and can see why...
  10. G

    Another Stricture

    In my case strictures are in mid ileum. Baloon dilatation through colonscopy is almost impossible as it’s too far away i guess (1 meter up the ic valve). Also I usually develop a lot of strictures, during my surgery (2013) they found out like 7 strictures they fixed through strictureplasty. 2...
  11. G

    Another Stricture

    What are your symptoms? Obstructions etc..?
  12. G

    Another Stricture

    You had 4 surgeries for resection? I guess after the second it was laparectomy? When did you start with biologics, after the forth surgery or before? I think too higher levels of stelara may help.
  13. G

    Another Stricture

    Hi Grant, I have the same issue with recurrent strictures in my ileum. If the stricture is due to inflammation, getting the disease under control, could help getting rid of it. How many surgery you had, and whats your treatment?
  14. G

    So completely annoyed with my GI!

    I’ve also this impression GI don’t even think we have lifes, jobs, friends, relations outside crohn’s disease management.... Getting answer from them outside appointments is always difficult, if they are late or change your plan last minute, they dont care... It’s crazy the time we waste in...
  15. G

    Fistula healing after using Remicade?

    What about fistula in the ileum? Is there the same indication and success than for perianal fistula?
  16. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    What about entyvio and stelara?
  17. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    http://jem.rupress.org/content/206/9/1839 this macrophage theory seems to have been already discussed in some studies. Now, could they find a cure easier if this is right? :D
  18. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    Studies show efficacy for enteral nutrition, but unfortunately the relapse rate remains high compare to the effort it takes to follow it... https://www.ncbi.nlm.nih.gov/m/pubmed/30098021/
  19. G

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    Hi Kiny, are you a scientist studying crohn's disease? or you are just a patient like us doing some research?
  20. G

    Study reveals a microbe's molecular role in Crohn's disease

    https://m.medicalxpress.com/news/2019-06-reveals-microbe-molecular-role-crohn.html Changes in the gut microbiome have long been linked with Crohn's disease and other forms of inflammatory bowel disease (IBD), but the biology behind those links has remained murky. Researchers at the Broad...
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