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I don't get it. What did they find? Humira + mtx better than Humira alone?

Oh and there is no way his calpro could be normal now. I think it's just a matter of what will be prescribe and what to do about Stelara frequency.

I always have extra calpro orders. No, there was no response about tests and we hit the weekend.

I need to send in another calpro and that is gonna tell everyone quite a bit about the next step. I have both Modulen and Neocate at home and I alternate them just to make things interesting. Praying for a good bathroom experience today. 🙏🌸💐

The tube will be hard. I think there is a much better chance of having him drinking the milk if the alternative is a tube. Is Modulen semi-elemental, btw? His small bowel was all impacted (definitely not mild). I wrote the doctor about the stool tests but she didn't respond on that particular...

How come? I thought the pill cam is the only way we can "see" the small bowel?

You can look up Jordan Peterson and his daughter's remarkable journey managing their autoimmune problems on the carnivore (or the Lion) diet. She almost "wasn't going to make it" was Dr. Peterson's quote either in his book or on Rogan's show. Mikhaila's underlying problem is the most severe so...

@Scipio How often do you use the capsule camera endoscopy for monitoring?

Thank you so much about the logistics around een again! I'll wait and see what the doc wants to do.

Right! I completely forgot that the IV dose is so much higher. Those weeks following the infusion were truly nice when everyone was sleeping through the night and things actually felt normal. I basically told the doc today that I am open to anything because life is not too fun at the moment and...

I am trying to figure out if he is the slow to respond guy or the I sorta responded but eventually ran out of med type of a guy.

What is throwing me off is his diarrhea went away, he gained weight and the normal calpro all happened after the infusion. These positive indicators made us feel that he was indeed responding to Stelara.

New info came in: his Stelara level at the 8th week before the injection was 12.7.

5 - 8 GIs? I do?

This is so puzzling. The normal calpro, lack of symptoms and weight gain... in a few short weeks he gave it all back (tbd about calpro). :unsure:

Which schedule should we use to assess the state of the disease? As in, if the injection schedule is every 8 weeks while on a bridge therapy (EEN/PEN/steroids) and if everything looks good, when can the bridge therapy stop? If not, how and when do we know to shorten it to 6?

How does the bridge work, what medicine will be prescribed and how long do you need to be on it? Say if he needs to be on the 6-week schedule, then if we wait a few more weeks then the medicine should kick in?

Actually he stopped Humira 5 months ago (normal calpro for 4 months) and what triggered the treatment was his 650 calpro on 1/18 (the 5th month since stopping) and symptoms. So his calpro was 650 then Stelara infusion and dropped to < 50 4 weeks after the infusion. He just turned 14. I just...

No he was not on anything else. His diarrhea stopped and also gained 3 lbs during that time. We were positive that he's responding to Stelara since it's reflected in his lack of symptoms, weight gain and also normalized calpro. He had some superficial ulcers in the colon but mainly the problem...

Seeking advice from people who are on Stelara please. My son started Stelara in January: 01/25 loading dose 02/27 calpro < 50 (Normal bowel movement from around the 3rd week after the injection until this point) 03/20 bad diarrhea 03/22 -Stelara 8th week injection, crp normal, sed rate is...