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Hi LauraCarlos. I hate to hear this about your son! It is good to hear that he has responded well to steriods and hope you can get him into remission. My son was 14 when he was diagnosed so his situation may not be exactly applicable. Steroids were a miracle for him. His issue was getting off...

Sascot, I'm sorry you are dealing with this. Your description of the pain was so vivid and horrible. We really don't need anyone else with issues around here, so I've decided this needs to be something very easy diagnose and address. I hope this is behind you very soon.

Sorry. I hate that Crohn's is beating on your so much right now.

Hi voyager. I am sorry about the diagnosis. It really hits you hard, doesn't it? I see that crohninct tagged me to respond and I am happy to tell my son's story. I'm doing it less and less publicly but it isn't that popular with some posters! But I'm thick skinned today and think the more...

Yeah! May it be long long lasting!!!

Gi-jo-mom, I'm sorry. You are carrying a heavy load. I think we as moms get so focused on caring for our children, helping them deal with a chronic disease, that we don't take time to process and deal with it properly ourselves. It piles up and then boom, we sort of hit a point where we don't...

Yep. Straight from the gi gods at Boston children's themselves! May not be for every child but was given to mine.

Completely annoyed at the instance company.

Let's take the no blood as a wonderful sign you are moving in right direction. If each infusion brings some progress, we take that, right? I get the fear of moving off prednisone. I was pretty much convinced my son would be on it forever both bc he needed it physically and I needed it for an...

I've been making a smoothie type thing for my son that has 69 grams of fat and a lot of calories. It was given to me by an scd dietician so it probably tastes "healthy" but he is picky and still drinks it. It has 4 eggs, strawberries, blueberries, almond milk etc. If he wasn't on scd I would...

So glad to hear!!! Enjoy the weekend!

AJY, that looks so painful. I am sorry you are dealing with so much! I hope there is a change in right direction very soon.

Tommysmum, great progress. It sounds like you are in great hands with this dr Please keep us posted!

Hi there. Welcome. I am so sorry to hear about your baby. I know your heart is breaking. My son has been treated with Specific Carbohydrate Diet and about 30% of calories from formula (called EN) for about 1.5 years. He became sick very suddenly. We hoped it was an infection but after two...

Funny how you described the ortho. I do some work in pharma and I've heard ortho surgeons described as ex-jocks who don't realize they aren't in that stage of life anymore! They often relate to a patient wanting to return to the sport and ASAP. The joke is they release their patients much...

Hi. My son is on scd. Those celebrations are so hard! And why does every teen event involve donuts or pizza?? He does not like coconut flour either. Lately I've been using cashew flour and am trying to get him to like cauliflower flour (it is pretty nasty). We are militant about scd. One...

Hoping to hear good news about the infusion...

Hi. Just chiming in to say vomiting was one symptom that was slow to stop for my son. Even when everything else seemed to be going in the right direction it would happen randomly. We couldn't associate it with any particular event, food, whatever. I think it was the last thing to go before he...

Sorry about his injury. Hope a plan comes together at ortho. And he is very mature to think about what meds he should and should not take! Be nice to him. I dislocated my shoulder twice. I thought the pain was worse than childbirth (which was horrid!)

Catherine, this is the kind of news we love to hear on the forum!! Glad you escaped the ER.