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Crohn's Disease Forum

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  1. Crohn2357

    Any experience with Rinvoq

    When did you start using rinvoq? I hope it helps you heal.
  2. Crohn2357

    Little Pilgrim moves to 3rd Biologic

    The latter, my rectum is in bad shape; but I haven’t lost heart. Aside from other meds for CD, we doubled Stelara dose to every four weeks about two months ago. I think that’s very understandable, but living with CD has taught me the importance of being aggressive with the treatment, as...
  3. Crohn2357

    Little Pilgrim moves to 3rd Biologic

    I wish it was possible to combine Humira and Stelara for the treatment of CD. If your daughter hasn’t been using an immunosuppressant with the biologic, that would be worth considering. My crohn’s is mostly in my colon. Entyvio didn’t help me, but I have read that it can take a long time to...
  4. Crohn2357

    News from RDHL - RHB 104 update

    Thanks for sharing. I find the results quite promising. I really wonder what will happen next regarding this. If this gets an FDA approval for the treatment of Crohn’s disease, it would be wonderful for us.
  5. Crohn2357

    Anti-MAP Therapy Support Group

    https://crohnsforum.com/threads/news-from-rdhl-rhb-104-update.87601/
  6. Crohn2357

    Vitamin E Enema

    I also wonder the same.
  7. Crohn2357

    MRI Tips

    If he ever gets a stricture in his intestines, for example, colonoscopy or capsule endoscopy can become very much useless.
  8. Crohn2357

    MRI Tips

    Plain MRI without contrast of any kind is still useful for Crohn’s. Also DWI.
  9. Crohn2357

    MRI Tips

    https://mybiohack.com/blog/gadolinium-based-chelation-contrast-agents-removal
  10. Crohn2357

    MRI Tips

    https://www.anausa.org/smf/index.php?topic=23544.0
  11. Crohn2357

    MRI Tips

    https://www.gehealthcare.com/about/newsroom/press-releases/ge-healthcare-announces-completion-of-phase-i-subject-recruitment-in-early-clinical-development-program-for-a-first-of-its-kind-macrocyclic-manganese-based-mri-contrast-agent?npclid=botnpclid
  12. Crohn2357

    MRI Tips

    MRIMRI & MRACME Articles Jan 06, 2022 The Future of Magnetic Resonance Imaging Contrast Agents By Minton LE, Pandit R, Willoughby WR, Porter KK This article is accredited for one SA-CME credit and is available at appliedradiology.org/SAM2. Gadolinium (Gd)-based contrast agents (GBCAs)...
  13. Crohn2357

    MRI Tips

    https://radiology.ucsf.edu/sites/radiology.ucsf.edu/files/wysiwyg/patientcare/patient-safety/UCSF_Ferumoxytol_April%202018.docx
  14. Crohn2357

    MRI Tips

    https://www.rsna.org/news/2018/january/alternatives-to-gadolinium-based-contrast-agents
  15. Crohn2357

    MRI Tips

    What were the manifestations of the allergic reaction? In your son’s case, Does your dr request mri without contrast? What are the doctor‘s comments about the usefulness of mri with vs. without contrast, especially in regards to screening for colorectal cancer? Have you considered getting the...
  16. Crohn2357

    MRI Tips

    I share your concerns over gadolinium. Thanks for sharing.
  17. Crohn2357

    Major cause of IBD found?

    Further reading: https://www.healingwell.com/community/default.aspx?f=38&m=4344174
  18. Crohn2357

    EEN makes things worse - any advice?

    This. Take the meds.
  19. Crohn2357

    Anti-MAP Therapy Support Group

    I just saw the comment @Delta_hippo pointed out in the thread above: Dr Timothy Behr 4 months ago A decent paper that shows safety only but there are several problems that are confusing. MAP in Crohn's Disease is highly controversial and subjective. Questions to answer, why was there no MAP...
  20. Crohn2357

    Anti-MAP Therapy Support Group

    https://crohnsforum.com/threads/map-at-the-2023-ueg.87367/
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