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I also think I have seen contradictory statements from him regarding his personal/medical history, and I would encourage you to post them as they build up more. I would also urge an admin to go through his private messages to make sure he is not trying to lure desperate people for personal...

Has he been on stelara ever since, in remission? How much oral mtx does he also take?

Some months before I wrote THIS a year ago, I had become extremely suspicious of the motives, and the moral and intellectual integrity of the people who run the whole CMV show. I don’t think anything remotely useful to Crohn’s patients will come out of the CMV show (except for maybe slight...

Good colorectal surgeons know very well that anastomosis surgery significantly increases the risk of Crohn’s flare-ups, due to the reintroduction of fecal stream that was previously diverted with a stoma.

This is an old article that I like. SUMMARY Achieving a substantial reduction in the bacterial flora of the gut is a theoretically attractive means of treating inflammatory bowel disease, particularly colonic disease. There are practical difficulties in obtaining a sustained reduction of the...

From: https://crohnsforum.com/threads/map-at-the-2023-ueg.87367/

Have you seen the full paper? How many patients had the full dose, do you know? I’ll delve into it once I get the PubMed version. I wonder whether they tested for MAP before and after the vaccine, their testing method for map, their way of evaluating, and definition of Crohn’s disease activity...

Thanks, could you share the pubmed version of the paper? I couldn’t open the link.

I also stopped following the research. This is what I wrote about the vaccine a year ago: Before this, I had written about my thoughts on the antibiotic cocktail research about six years ago, in another Crohn’s forum; my nickname there was “xy123”...

Do you have any info about the current state of both the “map vaccine” trial and the antibiotic cocktail research by redhill?

Any updates?

Steam-cooking olives before eating may be another method to make them more digestible. They also should be chewed well.

About a decade ago I used a powerful systemic antifungal drug to treat steroid-induced oral candida infection. The drug helped my Crohn’s (intestines) as well. The positive effect was noticeable, and I have always found that interesting.

I would continue with this conversation, but I don’t want to use Pangolin’s thread for it. I have some disagreements that I won’t delve into. Just a note: if you haven’t already, get him tested for MTHFR mutations. If it comes out homozygous positive, consider giving him methylfolate instead of...

I started stelara a few months ago. I have also been using 6MP for years. Doesn’t MTX make him feel bad? It lowered my appetite, especially for red meat and animal fat; which was unusual for me. It also made me feel bad in general. I used injections, and folic acid the day after. Its effects...

Glad to learn he’s still doing well. I hope he continues like this forever. I don’t know what product your child used, but I actually quite liked the taste of modulen, and see it the other way around. You make it ready the day before, and you have the whole day’s meal ready in liquid. Tastes...

Is he still doing good? I wonder, can’t he be on total EEN for a long time (years), if it helps him with inflammation and nourishes his body?

I wouldn’t speculate so. IIRC, @my little penguin has children with CD, she may give you another perspective.

Hi, welcome to the forum. How did they diagnose his Crohn’s? If through colonoscopy (and other imaging devices), they should have handed you their results, and you may understand the severity of his disease by reading them. Ask also the doctors about it. I think they did a fantastic job by...

Do you ever experience gut problems of any kind with olives, do you consider olives safe to eat? What kind of olives do you eat? How much and how often do you eat them? I have read about baked/roasted olives, I may try them to see if they are more tolerable with Crohn’s.