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Crohn's Disease Forum

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  1. Clash

    Remicade $$ Vent

    You are right I don't know where I was getting the 80/20 from. It's 500 individual deductible or 900 family. Once that's met it's 90/10 until 1500 out of pocket is met (but deductible is included in that 1500.00 max) But when we were on REMISTART everything they paid after insurance went toward...
  2. Clash

    Humira trough test

    Ronroush7 by homework, the poster means when he has researched his meds and can have an informative conversation with his GI about his treatment Ihatefistulas I'm going to tag my little penguin and maya142 as well as jmrogers4, one of them may know the trough levels or can point you to some...
  3. Clash

    Remicade $$ Vent

    Do the co-pays work toward your deductible? We don't have Co pays so I wasn't sure how that worked. Our insurance pays 80/20 until deductible of 500 individual or 900 family is met then 90/10 up until out of pocket max is met which isb1500.00 (but includes deductible) then 100%. So until we hit...
  4. Clash

    Remicade $$ Vent

    That's true without REMISTART it can get a bit high. The amounts(without REMISTART) can vary depending on your insurance deductibles and such. But, since REMISTART isn't financially based there's no reason not to enroll. There is the exclusion of Medicare/Medicaid meaning it needs to be...
  5. Clash

    Remicade $$ Vent

    For remicade there is a co-pay assistance program offered by the manufacturer. It is not financially based so your salary is not taken into consideration. It requires that you have commercial insurance which it seems you have. The name of the program is REMISTART and can lower your out of pocket...
  6. Clash

    504 Update - Pre-College

    Oh it was in his accommodation but the professor went on this long diatribe about how distracting it was and that you didn't retain as much info using it compared to writing it out blah blah blah. It was directed to the whole class but still C felt awkward about having it then. After that class...
  7. Clash

    504 Update - Pre-College

    Oooh and having a laptop or like a surface pro 4 (tablet/laptop) accommodation or class. Some classes don't allow those but joint pain (with CD and Since C has SpA) can make note taking hard. C had a professor that did not allow them in his class and really was nasty to C about it. C gave in...
  8. Clash

    504 Update - Pre-College

    Because C hasn't been in remission he chose a local college that is in our hometown. He decided early on this was his best option as even though he was asymptomatic he didn't want to be in a dorm and flaring. Since the college he chose was a state College and allowed commuter students he lived...
  9. Clash

    504 Update - Pre-College

    Most colleges in our area require freshman to stay on campus but there's a huge difference between dorms. This is mainly because as new dorms have been built more amenities have been added. So each time we spoke with a colleges disability office we did request the newer suite dorms where each...
  10. Clash

    Research Study Hype and Click Bait

    Naw...you know me, I'd rather just watch my kid suffer through a debilitating disease while I feed him all those pharmaceuticals! My patience for these "well meaning" folks has long ago been eroded away. I think I become more blunt with each suggestion!
  11. Clash

    Undiagnosed still, can this be UC or Crohn's?

    I doubt that it is free. I'm sure there are other major hospitals with IBD clinics that do this. It just may take some digging to find those that do. Cleveland is a bit down the road for ya (ha) but like I said it doesn't require you to travel.
  12. Clash

    Research Study Hype and Click Bait

    I see the flipside but I swear one more person sends me that fungus article along with their advice of some probiotic, aloe, diet, essential oil, Apple cider vinegar blah blah blah I'm going to lose my $#*+!
  13. Clash

    Undiagnosed still, can this be UC or Crohn's?

    Not sure where you are located but some IBD clinics will do a records review which wouldn't require you to attend. You send all of your GI testing results and medical records and they give their opinion. Cleveland Clinic is one of the facilities that does this, I believe. Even if you chose to...
  14. Clash

    Did I do wrong?

    Was the call from someone associated with SSDI? They don't generally call and promote it. If you feel that it would be helpful to get then I would absolutely apply. Just make sure you go through the proper channels. My parents had a call from a "consultant firm" trying to get them to sign my...
  15. Clash

    How effective is a ct scan for diagnosing ibd?

    An MRI can be just the scan with or without the use of dye or contrast, whereas the MRE involves drinking barium mixture as a "dye" before the procedure as well as a contrast the is injected intravenously on into the procedure. But yes neither involve radiation and if you have metal in your...
  16. Clash

    Humira biosimilar approved

    http://www.medpagetoday.com/Rheumatology/Arthritis/60455?pop=0&ba=1&xid=fb_md
  17. Clash

    How effective is a ct scan for diagnosing ibd?

    njyupyup61 there is also the MRE (magnetic resonance enterography) which is often used to determine if there is narrowing or issues in the part of the small bowel a scope cannot reach.
  18. Clash

    Mom of 19 year old Asperger son just start on Methotrexate

    EEN is exclusive enteral nutrition or formula only. There is polymeric like Boost or Ensure then semi-elemental and elemental. The polymeric is the most palatable and least broken down. Some drink the formulas others take them in by an ng tube. It is as effective as pred by some studies at...
  19. Clash

    New to forum, could use some help!!

    Do you think the pred is causing your joint pain? Joint pain can be an extra intestinal manifestation of CD. There are several different forms of joint pain that can occur with CD and some can run independent of active Crohns disease flares. My son is 20 and has CD. As an EIM (extra intestinal...
  20. Clash

    Help. I'm scared.

    I'm sorry you are in so much pain. I think it's important for you to seek medical help. This is a support forum, so although the you can clean info from others' experiences it in no way can or should be used as medical advice. Only a doctor can give out medical advice. I do understand that...
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