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Thanks for the support. I feel for you too. At least now I know there are other kids with similar symptoms. I won't let them blow it off - I may only have a matchbook medical degree, but the GI team knows I do my homework and I won't go away. The challenge is navigating the referral process...

I'm not so much worried as frustrated, I just want his condition acknowledged, identified and treated...

They are tan - he has only two of them - first one appeared 3 months ago and almost gone now.

Thanks - He will see the GI next week and I’ll ask for the tryptase level to be tested. Of course! Why wouldn't there is another difficult to detect disorder like MCAD to make me crazy!! God I hope its not that one...Sigh. I knew about Darier’s sign and tried it but I don’t know if I was...

We’re on the same page... Hi Tesscorm, You are right about the Restless leg it drives Will nuts. He was anemic in October and went through a series of Iron infusions but it didn’t seem to have an impact on his legs. I just had all his levels checked Vitamin D, B12, Iron, CBC, ESR, CRP all...

imaboveitall, I am so happy to see this post - if only to see that there are other kids in the same boat as my son - we have been feeling quite alone. I joined the forum a while ago but haven’t posted much, and mainly in the Humira forum. My 12 (almost 13) year old son was diagnosed with...

Thanks to you both - I picked up those ginger gravol (think they’ll come in handy). We’re going to give Zofran a try if needed and have increased Prevacid to twice daily. I’m much more comfortable with this route for now. Pen, he is severe Crohn’s, hence our difficulty getting off of...

Hi Everyone, I am new to the forum and pretty new to Crohn’s. I posted this on My Story but thought I might also post here. My 12 year old son Will was diagnosed with Crohn’s in May of this year. He has had a very rough ride and was hospitalized for 8 days following a severe flare up just...

K, thanks for the offer, we’re ok for now with coverage. We have a nurse that gives his Humira injection for now...I guess a nurse will teach us to do Methotrexate injection if it comes down to it. Getting my son onto the teens forum might be a good suggestion - will give it some thought...

Thanks for the welcome Dusty, I will definitely check out the parents forum also. K, Thanks for the neighborly welcome - and advice - much appreciated. I am super happy he is finally off prednisone - the doctor is pretty good - discussed all treatment options - including Remicade - we chose...

Hi Everyone, I am new to the forum and pretty new to Crohn’s. My 12 year old son Will was diagnosed with Crohn’s in May of this year. He has had a very rough ride and was hospitalized for 8 days following a severe flare up just prior to diagnosis. He was put on Predisone and Sulphasalazine...