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Love this advice MLP. Specifically in our case, the Doc is saying my son’s disease is only at the perianal area, and it is unlikely to move to the bowels based on the result of all his scopes/tests and also his prometheus test. I specially asked him about the fact that we read early treatment...

Good luck! Keep us posted.

Wound care did not do anything. It was only a bridge to get referral to the Hyberbaric group. The Hypebaric doctor was very knowledgeable and believed we might benefit from it. However, he said because all studies so far for perianal Crohns and Hyperbaric oxygen treatment are case studies...

Oh no. Sending you positive energy. Hope you all feel better very soon.

https://www.gastroenterologylearningnetwork.com/meeting/advances-inflammatory-bowel-disease

Sorry to hear about your situation. I totally understand the anxiety associated to committing to biologics, as we are in a same boat. Son had an abscess in July that turned out to be connected to a horseshoe fistula. No other signs or symptoms. All tests are normal and he is growing fine. GI has...

Are there any statistics on drug (Remicade or Humira) induced skin or joint inflammation? Is one better than the other?

Thanks much for the info. I didn’t know Humira shots can go down to every 5 days.

Hello MLP, Do you know if kiddos over 12 years can start with Stelara or Entyvio? Or do they have to try and fail Remicade and Humira first?

This made me cry... Hope you feel better very soon. Congratulations on your marriage and best of luck to both of you.

Thanks MLP for the advice. I didn’t know your son had back and forth change in diagnosis. Must have been very difficult for you over the years... We’re just starting this road and it’s been very rough so far.

Hello everyone, We are going through the diagnosis process for Crohns for my son. It’s been a few rough months for us ... My son has two perianal fistulas. I like to know if anyone in here is diagnosed with perianal Crohns if all the scopes and test are normal. We have done colonoscopy...

Oh... so sorry to hear that. I’ve learned surgeons don’t like to talk much :/ You have every right to be frustrated. I’m praying for the lump to be benign. Takeout sounds good. Stay positive and before you know it the 6 weeks will be over. Take care.

Happy to hear his fistula is gone. That’s a big one. Sending you hugs and positive thoughts. Hope your little one recovers very soon .

Hope your son is doing better. Did Remicade help his fistula?

Hopefully all goes well on Wednesday. I can only imagine how difficult it’s been so far.

My heart is with both of you today, sidoni. I hope it goes well. My son was hospitalized at the time. They did his endoscopy, colonoscopy, MRE and MRIs in a matter a few days. I don’t remember exactly if they did the scopes first or the MRE, but I am sure all the MRIs happened after his scopes...

To make you feel a bit better, my son did a MRE couple months ago. They gave him a banana flavored drink. He didn’t mind it at all, and he didn’t have any complaints during the procedure. Best of luck!

I am so happy the surgery went well. Hope he recovers very quickly, and this puts him on remission.

I hear you, my little penguin. I am a mom to a teenage boy in the undiagnosed club. I am driving myself crazy. I guess we all are going through the worrying phase. I appreciate all you parents here.