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I went into remission with diet, SCD, took around 6 weeks. Lasted until I cheated and drank a lot of alcohol one night (3 months). Based on my symptom score I am still in remission clinically but I do have inflammation. Remission via diet is very fragile and involves a lot of trial and error...

Another pretty big doubt I have on your fiber theory is, SCD itself excludes starches - that EEN-s do tend to have - and includes plenty of fiber - that EEN does not typically have. And it's not as successful, but still quite a decent diet that's well proven for Crohn's.

And what about those studies around vegetarian / vegan / semivegetarian diets, even though on relatively small samples, that seem to strongly indicate the efficacy of these diets full of fibre? There seems to be quite a few out there: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2877178/...

Also one more thought.. this study you linked yesterday here: https://crohnsforum.com/threads/presence-of-maltodextrin-emulsifiers-or-lack-of-fibre-do-not-impact-effectivness-of-en.87321/ also seems to suggest that actually the EEN may or may not have fiber and / or starch, it will still be...

And perhaps I should add, I am asking this after farting my way through a day after consuming a single banana yesterday. So it's not unreasonable, but because I am already on SCD, I would need a lot of mental fortitude to go for low fodmap too to see if it helps my ongoing flare. And so far I...

Intriguing theory Kiny, but if bacterial fermentation is to blame how come most studies done on low fodmap diet and IBD show that it has no significant effect on inflammation, and in clinical practice only really used to help overlapping IBS symptoms?

Yes, but I am not arguing for PEN+normal diet, thats well proven that is worthless. I am saying CDED specifically is quite effective with or without PEN. Study could be bigger though. https://pubmed.ncbi.nlm.nih.gov/34739863/ I feel like the authors of this study you linked are going the wrong...

Pretty exciting stuff. It's a tricky one to answer, because then you also have diets like CDED, that are proven to work almost as effective as EEN or CDED+PEN just without the EN part... and one of, if not the main feature of CDED vs regular diet is to cut out the above mentioned highly...

" Or might it have to do with the lack of fungal antigen. " - not sure about this one - I do sometimes have mild candiasis in my mouth in the last years, doesn't cause symptoms or ulcers really, but visible when I check in the mirror. It does become way more visible when I take EEN, I assume due...

I do believe there is some sort of pre-clinical phase, at least in some Crohn's subtypes. I had IBS-D symptoms for 10+ years before obvious Crohn's symptoms started, been to GI-s a few times, no significant signs where found, but there was an increasing amount of sensitivities such as sorbitol...

cool thanks! actually my eyes turned almost fine since I went off from Elemental 028 - gonna give it a few more days to really draw conclusion if it was somehow driven by EEN, but with what mechanism, I have no idea - maybe it somehow flared up my Crohn's but that would be almost unheard of (?)...

One thing that does stand out though - now that I have switched to broth and chicken breast in it for around 24 hours, my eyes seem much less inflamed / way less blood vessels are clearly visible. So based on that I am kind of guessing EEN did in fact do something that wasn't great.

I dont know, I failed similarly with Modulen in the past, there I stopped after 4 days and my calpro after was actually way higher than a couple of days before I started. I thought its the milk proteins in it, hence tried the E028. I got liquid stools then too, but there I had cramps and pain...

Thanks for sharing your experience. I switched to chicken broth for now, because I was quite concerned about the formula making things worse - I got circles around my eyes and in the white part of it many blood vessels started to show, which made my wife scared too. And by the end of the second...

You have touched on a couple of things here. Clearly you are going through a lot, glad you are seeing a therapist. This disease challenges each and every one of us. So don't be too hard on yourself, even without a shitty disease like the one we face, staying human can be tough enough. Remember...

Hi! I have been trying different polymeric enteral nutrition formulas in the past, and unfortunately all of them have given me cramps, pain, and (often explosive) diarrhea as well as increased my calpro. These were typically milk protein based formulas. Afterwards I was able to find a restricted...

I truly wish that were the case. Last week I have tried the 4th EEN formula that made things significantly worse. And recently I have been doing pre and after calprotectin measurements, so its not just the symptoms. I had to do broth fasting 3 days to get back in ok-ish shape. But, like you say...

In my personal experience going 2 days on broth liquid does seem to help a lot. But I cannot stop eating longer than that, because I need to be productive on an everyday basis. And every failed experiment with this joke of a disease takes many days to recover from, so I dont really dare to try...

What I am struggling to understand is, does fasting help patients the same degree as EEN in the short term? I have only seen lousy nonsensical studies on this matter. That would at least give us the info if there is something in EEN, or rather, something that isn’t in it, that helps so many...

They did a biopsy on a healthy / normal looking stomach (I also didn't have any symptoms resembling gastritis as far as I could tell, neither did others in the study I linked), and that's when they saw it. There are specific chronic signs histopathologists look for that are distinct from active...