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@Scipio Yeah, it sounds like she's super not liking the potential of lupus, which I mean, I'm not thrilled with either but I've not been thrilled with anything since like 2012 so lol. Both are autoimmune diseases if I remember correctly, but I think Crohn's is classified weird, like in IBD...

@jadegreen All I know is my therapist is hoping it's a definitive Crohn's diagnosis since it can be treated (so she says) but she's far more worried about a lupus diagnosis, which see says has no outcomes, so that's fun. My test is next Friday, the 8th, so that'll be a hoot. The whole situation...

I did actually get a hold of my PCP and he did finally order the test, and he asked me to call the labs and find one around my area to find one with a dentist style chair. He said laying down makes it way easier. He also said bring some cold water and a small snack to eat when I'm done. He said...

@jadegreen So I did meet with my new GI doc's personal dietician and she noticed some issues, none of which are food related, she thinks I have lupus, which is news to me. She says my symptoms are all over the place and not episodic but more like "long period of time being sick" then a "long...

Well, I have no referral or recommendation for a dermatologist, so I guess I could call and get one. I do see my new dentist next Monday, they may have an answer. We'll see about the motility doctor. I will need a ride as it will be entirely too early for me to drive that far. I don't...

@my little penguin Hello, I figured I would add this here, I finally saw the doctor and it was a complete waste of time. The only things she said is, 1 ) she wants my mouth ulcers biopsied, she did not schedule it nor tell me who does that. 2 ) she wants me to see a dietician, which they tried...

Already have the dates and definitive timeline, both handwritten and in record form, like medical records form. The written one is about 28 pages long. and I pride myself on my record taking, since I am a professional historian. That added to the insult when the previous doctor refused to even...

The last doc, no, he just said it wasn't disrupting my life enough to warrant anything else. As for the colonoscopy, no, nothing was found other than evidence that made them suspect Crohn's in the first place. I know nothing of the biopsies, other than what they told me. I did get the pathology...

Hey everyone, so I finally have my long awaited Crohn's specialist appointment next week and I'm pretty terrified. Had a really bad experience with the guy who diagnosed me. He later refused to treat me. Or rather said he said I would be fine without medication and I continued to get sick and he...

@jadegreen Thank you for your reply. It comforts me to know I am not the only person who remembers their bad moments regularly. I am beginning to feel more confident with things now. But I did notice something, last time I got sick it was really hot out, like 90+ degrees. Going back in my...

@Andersen007 Thank you for commenting, it is just very frustrating. I'm superstitious in general so I have really concrete routines. As for work, I work in a specialized retail (non-essential products) but I used to manage 5 days a week, now I'm down to 4 and the occasional 3 because I have...

@J100 Yeah, I hear ya. I def don't trust the one I have and my area doesn't have a quote "Crohn's specialist", the closest one is like an hour drive and I'm struggling to find the desire to go. The one gastro who said I have Crohn's and the radiologist who did the tests with him all say...

@J100 I already had those back in June. I don't need to do them again in September, like one out of three doctor's "demands." I didn't think I had to explain that in this thread, do you need a copy of my diagnosis paperwork too? Endoscope, this year, confirmed Crohn's of the large and small...

Hey, I have a random question, been meaning to bring it up. So in January 2023, I was on my way to work, was TOTALLY fine ahead of time, but my Crohn's kicked in and I got sick. To this day, I will not go to the intersection I got sick in. I'm too afraid of it happening again. However, since...

I kinda know what you're going through, my Crohn's doesn't have the strictures or anything, just the fevers and flare ups, but I can't offer any advice, as my specialist refuses to call me back. I can only offer sympathies, especially when it comes to doctors being unwilling or unable to treat...

@Scipio I don't know where else to go, my area only has 3 "health networks" and all 3 have failed. The one poisoned me and sent me to a psychiatrist instead of treating me, the other has done what it can but it's so small that it doesn't have the resources to really treat me anymore, and the...

Hello, this is my first post on the forums and I just wanted to put out my nightmare of a story, I feel the need to open up about my ordeal but before I go on, I want to thank the forums in advance for giving me this opportunity to have an outlet. Setting the stage, I am 35, male. So on July...