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my daughter has been on pred for a few months now. Every time we taper she gets worse. They have been playing around with her medication for a while now. Hang in there. The sooner you see specialist the better. xx

Hi - I just wanted to let you know that I see a GI in Sydney with my 16 year old daughter and I got in to him in less than a week. One way to get in FAST is to get your GP to make the appointment on your behalf. It's horrible when you are just put on a waiting list. I could recommend a few names...

It's hard for me - because I'm not generally a patient person. But it's great to know others are in the same situation. Awful, just awful to see your child in pain. Would rather it was me anytime.

Just wanted to thank all you wonderful people so much. Went to the GI and increased prednisone. also got some pain relief. Last night my daughter slept the whole night without pacing the house in pain. I'm keeping her home from school this week. Hope the rest will help.

S only recently diagnosed beginning of May. Very new. No Crohns in the family. Sheryl - It's so hard :( What is most difficult is that my husband thinks I need to push her out to do things, which I think would be counterproductive. Perhaps I need to get him on the forums.

Oh - my daughter's name is Sara! Maybe it's the name??

a few hours a day. Has not been in since last Thursday. Too ill and lack of concentration. The school have been very understanding.

thanks for your response. Yes, she is having fortnightly bloods. Her CRP result has increased from 8 to 10. She is on 10 mg of prednisone at the moment but has been reducing down over a few months from 50mg. She is lethargic, has joint pain and in constant pain. Also finding it hard to go the...

My 16 year old daughter has been recently diagnosed with Crohns Disease after a year of being unwell and ending up in hospital for a week with bowel obstruction. Subsequent colonoscopy revealed inflamed area in the ileacical valve. Pathology results also confirmed Crohns. She is on reducing...