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Hi just checking in how everybody is doing. Full lockdown ended here two weeks ago but not much has changed most shops still closed, restaurants still closed and schools still closed. Dh and I still working from home and only leaving house once a week still. Just wondering have any of you had...

Hi there and so sorry to hear about jude, but glad to read your last post that he is starting to do better. We are in Ireland too - Tipperary. My daughter Lucy who is 11 was diagnosed with crohns at two so we are well used to Crumlin and how the Gi department operates. Firstly I would call...

Hi there, my daughter Lucy was looking at this scenario a year ago, she failed remicade at 4, went into Humira, worked for a number of years, about 18 months ago she became symptomatic, after a number of months it was decided that she had failed humira, switch to stelara, 5 months later worse...

Love the coffee idea 😃

We are in lockdown in Ireland. Dh and I are working from home since schools closed so getting used to it now, so on day 20 today. Have only left twice for essential groceries and pharmacy during this time. I am the only person leaving as dh is high risk as well. Its getting hard as I haven't...

How is your little boy doing ?

Some positive news coming from scotland. Five children with ibd diagnosed and none needed hospital. Small number but encouraging. Our ibd told me this yesterday. Schools closed here in Ireland with two weeks, social distancing in place, non essential services and shops closed. Huge job...

Hi we used a product called Duphlac as stool softener and movicol to ensure a regular bowel. Branding is different here so could very well be the same thing. She also used salofac rectal foam had no effect, the pain was a problem but they were reluctant to prescribe anything other than Calpol...

Hi there had posted before I saw update from scope. Your little man sounds so like Lucy was at diagnosis. I am annoyed for you that your gi didn't seem to take the pain seriously

Hi there Every ointment known to man......can't really remember the names! Bath in hibiscrub every night and then we tried various dressings which didn't really work as it was difficult at times to keep them on. Tried 6mp, lots of antibiotics and remicade before it finally healed with...

Hi my heart goes out to you both. My gaughter was diagnosed at two and her presenting symptoms were fissures.... Going to the bathroom was such a nightmare. We used to just distract distract distract.... Do a funny dance sing a song.. Anything to take mind of the pain. We used to bath every...

Hi Shiral My daughter Lucy was diagnosed with crohns at two so big hugs to you it is a very worrying time. Its good that she's going to be tested. Lucy is 11 now and apart from one flare last year she has done really well and is doing well again.

I would agree with the others who suggest adding in Methotrexate. Lucy was on the combo of Humira and Methotrexate for 5 years, she had some side effects to the methotrexate initially but as time went on these completely subsided and she tolerated the combination very well.

Hi Momto6boys Hope your appointment with the paed GI went well on Monday. P

Just another update - Lucy still doing well, her perianal fissure is still open but is healing - it is slow but I know from last time it was open that it took a long time to heal. Had our GI visit 2 weeks ago, her blood work is good with regards to inflamation but her liver function tests were...

Just a quick update, all going well here with Lucy , 4 weeks post ee n she is doing really well, peri anal disease is still active but is significantly improved and improving, her bowel symptoms are gone and bloodwork is good. So after 14 months I think she is on the mend

Just want to update everybody - Lucy is doing much better, her bloodwork his better, her energy levels are better, down to 3-4 bathroom visits a day, no blood in stools and no diarrhea in about two week. She's almost 4 weeks into the EEN and is managing quite well. The peri - anal disease is...

HI Nelsonshan hope he is doing better. My little girl Lucy is 10 also and we had the same issues with Humira and they switched to stelara which hasn't really worked yet and we have now re introduced Humira. Humira is good for peri anal disease. Big hugs and hope he is feeling better soon...

Big Big Hugs Crohnsinct - hope O is doing better today and belated happy birthday.

Thanks everybody for the well wishes - so after 10 days she go home - had first loading dose of humira before we left hospital - second due again this week and stelara also this week and also on EEN. Because stelara can take up to 20 weeks they have decided to stick with it for now and will...