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It's so difficult agree with what's been said get a second opinion and specialist centre. Lucy was just turned two when she was diagnosed and it took a while to find something that worked - I think there is an element of trial and error with very young kids. We agonised over biologics but it...

Lucy was two when she had her first scope - only done at the ibd centre in ireland

Sorry that Grace has to deal with this on top of everything else. Hugs and hope your all ok.

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Vaginal birth here too for all 4 - only one with IBD, also my IBDer had no antibiotics in the first year of her life, - symptoms from 9 - 10 months .. so I dont know.

Hi Kimimidwife, so sorry the injection is so difficult, I remember when we started giving it to Lucy she used to cry and cry, but it does get easier and I think once an improvement can be seen in symptoms the child realises its for their own good. Hopefully you will be able to get the less...

Hi Oasis and welcome but sorry you had to find us. My little girl Lucy now 8 was diagnosed with Crohns when she was two after having symptoms frim 9 months and what you are going through now is difficult. Lucy is the 2nd of 4 children and so far so good with the others, eventhough I watch...

Thanks, went to gp who insisted on gi referral anyway given the family history, so we see him in a few weeks, in the meantime all is good with Evie, constipation is under control and no more blood. Started giving her a probiotic as her gut is probably a bit off after the antibiotics she had for...

Hi pilgrim, my little girl is similar age to your lo, she is 8 and mtx and humira since she was almost 4 was doing really well and about 18 months gi decided to remove mtx from the equation and she was in flare pretty immeadiately afterwards that took about 7 -8 months to get back in control...

Lucy was on remicade for a short period of time but she had a huge bounce after the first infusion which slowly faded, same after second and third then it stopped working, moved to humira no major bounce much more of a slow burner, took about 6 months to fully resovle her symptoms. In total she...

Hi everybody So you all know about my daughter Lucy (8) who was diagnosed with crohns at two after a year of being symtomatic and thankfully all is currently well with her. I have three other children 12, 7 and 20 months and it was always at the back of the mind and I am extra vigilent with...

fingers crossed that it will work for you daughter.

Hi Rachell, all of us parents on here have been where you are so absolutely fully get where you are coming from and only you can chose whats right for your son. I have to however echo what MLP has said and to add that the use of biologics has been life changing for my dd. We were extremely...

So sorry your boy is still suffering, my dd Lucy now 8 was plagued with anal fissures at diagnosis for a couple of years, they only cleared with humira, however before that we had a number of techniques that helped a little. Always clean the area with the shower after poo and leave dry...

Good update after 9 months of struggling. Lucy had GI and dental appointment yesterday, so her mouth is really good and dentist discharged her back to our own denstist ( will see her again if mouth flares) and bloodwork good, no symptoms and she has grown and put on weight since January - so...

Oh I feel your pain, just put it to the back of your mind along with all the comments about diet and other peoples need to tell you about their minor bowel issues as if they understand crohns. This just demonstrates a total lack of understanding of a very complicated illness in children, and...

Oh Farmwife so sorry to hear that - this happened Lucy with remicade but it happened a lot earlier, I think her third infusion, so they like you waited an hour and slowed it down and it went in ok, it happened again on her next infusion, it was so scary and it happened within minutes of it...

As others said maybe ask about Methotrexate/biologic combination. Lucy is on Methotrexate and humira and while the potential side effects are enough to keep you awake all night every night, it really has allowed her to live a normal life. Talk to your GI and get all your questions answered...

Delighted the trip went well

For Lucy she always has a bm within a few hours of eating.