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My 8 year old had been on Imuran for a couple years now. No side effects. She uses this drug in combination with remicade.

It's coming! That season of illnesses. :sign0085: My Grace just got her labs back and her white blood cell count (wbc) is the lowest its ever been and her lymphocytes are also very low. Her nurse warned us to do what we can to keep her healthy. I know washing hands and such are important...

:ybiggrin:Welcome HOME! I've decided to take the "Mother Gothel" approach and tell Repenzel it's not safe outside these walls. That way I don't have to worry about her going to college. Lol Same thing for Grace as lady organic. Normal FC count but scopes showed different. So do you like...

Interesting. I always thought GERD for Grace because she said tummy but when the doc asked where, it was below the belly button. Of course her main area was the TI section that showed problems. I use green tea for relief on my acid reflux. Peach flavor is my favorite. It works for me. It...

Same here! I'm glad wet did because after scoping we say damage that could have been so much worse if not for ppi's. Now with that said, mine is controlled with out meds. I prefer natural but will use meds when needed.

Grace's Omeprazole took weeks to work. I think he'll need more if this episode doesn't pass. Ironically my son is going thru another bout of abdominal cramps. He was given a med for anti cramping.

Your O and Jack are in college:eek: That's what's crazy.

We've been there. Hate cdiff. I hope she feels better soon.

Hi and a late welcome. MY girl was dx at 3. We also went back and forth with doctors on uc vrs crohns. She still had to be treated while they questioned what she has. Shes on Remicade now with Imuran. Works great! That's great to hear about the weight gain. I hope it all continues to improve...

Awesome news!!!

Certerzine(sp?) Is what my girl gets and was approved by her docs.

Hi, sorry late to this thread. My girl was dx at 3 but is 8 now. So not a teen. However, Grace 5 years later still drinks her formula. Just not full time. But when shes in a gi flare she needs MORE then the suggested amount of formula. Example (remember she's younger and the amount...

Both kids have been on PPI's, tums and such. Along with myself. Green tea..... ya, sounds weird. But it works for us. I have to drink it for a week to work but it's worth it for us. Grace is no longer on any tummy meds.:dusty: But was on it for YEARS! And my forum friend You give me yet...

OMW, I've tried 4 times to respond to this thread and then my children have questions. Grace is having this issue but after an mri, het doc dx migraine. Her pain is worse at night but can stay most of the day. She takes a daily med but also had a rescue med if needed.

Kim, remind me, is she also suspected of having EDS?

So my children and I got our flu shots yesterday. Today...... all of us have flu like symptoms, to the point Grace is laid out on the couch. If this is caused by the flu shot does that mean we can spread the flu?

:ghug: Truer words have never been spoken. Welcome to my and many mamas life's on this forum. EDS can affect the spleen for different reasons. The vascular eds that affects the spleen is more serious. What type does your child have? I thought it was type 3. I'm not an expert on eds yet...

Hi and welcome. Have you worked with the social worker at the gi clinic, yet? What state are you in? We have special children's insurance thru my state that covers copays, deductibles and such. We make above poverty level for sure but without this special insurance we would be well below...

Grace stated her biweekly Remicade today. Does anybody here do rapid infusion? I haven't asked her rheumatologist yet, just wondering. It'd be nice not to be here half a day ever other week.

Hi and welcome. My Grace was 4 or 5 at the time of humira. We found doing it right away, as in our of the fridge and into the arm was best for her. Trying to ice or cream made her get worked up by the time the shot happened. The buzzy bee helped detract her be that's about it. She does...