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I haven't seem it here. But I don't doubt. Still it's covered for us.

Grace does boost kids essential 1.0. This is not over the counter (that I know of). Its covered by her DME. Grace has a gtube.

Hi and welcome. Grace did have lots of bladder issues. She did so many urine samples the office just gave a bag full of cups. Lol She did about 7 or so test before a bacteria showed up. Still we didn't know if that was the cause. Went to a urologist because she had microscopic blood keep...

Hi and welcome. My daughter's GI put her on Remicade and Imran. Drugs like Imran, mtx plus more in this group help to stop the build up of antibodies to drugs like humira and Remicade. At least this is why her doc wants her on both.

Hi and welcome. My girl was dx at 3 but is 8 now. She did well on mtx with no side effects. However, she still needed something more. Remicade was added with good results (not perfect but good). She did in mtx injections. The needle is so tiny, she handled it like a pro. I'm glad her doc...

I hope it all goes well. Grace has had her feeding tube (n-gtube and than g-tube) for 5 years plus. It's been a life saver. She still drinks it orally but the tube comes in handy when she can't or is sick.

Wow, it's been so long since LDN days. It didn't work for my Grace. Matter of fact while on it she got more autoimmune issues. Perhaps just a coincidence but it still makes me wonder.

I've been there. It's s amazing and heart breaking what insurance can do. I'm glad the scopes are done. Grace did mtx injections with no side effects. She was also on Remicade and azathioprine. Still no side effects.

Interesting, I guess our rheumatologist feels different. :yfaint: Just repeating what I was told by a doctor. Grace's xrays and one mri's did show swelling in the center of the joints. I forget the name. The doctor can feel it, even though I can't see it. Multiple joints have been this way...

Grace pain doc is a leading expert in EDS. Which is cool because we didn't even know that when she started seeing him. He works closely with her rheumatologist to make sure everything is done well. Grace has been in twice-weekly therapies for years now and works with a therapist that works...

Right know her biggest problem joints are knees, elbows, ankles subluxing and dislocation) 1 hip, one shoulder (keeps subluxing). Our problem is figuring out jia from eds. Very frustrating :yfrown: Tube looks good but inflammation in the stomach is a concern. Last scope showed scaring and...

She's already on Imuran. She also was on mtx but took her off that a year ago when got better. Hmmmmmm......I wonder if she could get back on mtx. As to the tube, we use to vent all the time. We tried it but nothing came out and she says it doesn't feel like it's gas.

Here's a question for allunch who knows more than me. Grace is having intermediate pain and pressure in her stomach at her gtube site. But. ....I can rotate her tube with out pain. Any ideas?

Grace has enthesitis related JIA. :( I meet with the rheumatologist next month. And also the gi. I'm assuming the gi will run an FC stool test if the pred doesn't bring this flare under control. I've told the rheumatologist I wanted to hold of on the every 2 weeks until the pred has time to...

She's on 10mg/kg of Remicade, Maya. Insurance fought because they said 10mg every four weeks was high. I don't think upping will happen. The Rheumatologist said she will get a split dose every two weeks. (5mg every time). No he hasn't tested her levels. I didn't ask why. Maybe because...

Has anyone here received Remicade every 2 weeks? Did it work? We're you able to stretch it back out? Grace's infusion is only lasting about two weeks (3 months in a row) She's also in a jia and possible ibd flare. Her rheumatologist put her on a pred burst for 14 days at 30ml.

I hope you don't mind me asking but it's he still on humira or did I miss why they had to take him off? Will he being doing both?

I had TMJ so severe that they ended up having to take part of my jaw bone out. It did fix the problem but I still can't open my jaw the full width. Is she'd gong to college in the fall?

I do hope it helps.

Can I ask out of curiosity as to why? Grace's nurse brought this up but I forgot why she thought it would help?.