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The MRI reports shows reduction in the inflamed area. Right now he is on Stellara eveyr weeks. Stopped Methotrexate 4 motnhs ago. But i the recent past he had three episodes of flare up..same symptoms-shiveringm, cramps, bloating and vomiting. I do give him Buscapan but sometimes it is not even...

Thank you for sharing your thoughts. We are waiting for our MRI turn. He do need extra warm blanket during that time and his temp remains normal during the episode. It could be his body's defense mechanism becuae when he had a bood tootheache last year, he was shivering at that time too and...

Has anybody tried IBD Assist?

Thank for your suggestions. He is already taking Methotrexate with Stelara. I'll ask the Doc for the antibiotic if she can prescribe. We did not discuss the surgery yet, but sure will discuss the optionwith Doc and we are waiting for the MRI too. LAst MRI showed part of small intestine is inflamed.

It is almost 17 months since my son started Stelara, now every 4 weeks since almost 5 months. FCAP markers has gone down but not the numbers we want to see, He is still around 245. He experienced a flare up today after 5 months, vomitting 3-4 times and then shivering starts. Thats is th emost...

He is on Stelara since November 2021 and is on 8 weeks schedule. Last time GI said switiching him to 4 weeks. You know the paper work takes time to things kick in. Is your child on Methatrexate too or just on Stelara?

After keeping my son on HUmira for almost 20 months, Doc decided to swithc him to Stelara. Blood reports are perfectly fine, no issues but his inflamations numbers are still in the range of 300. Any suggstions based on your experience where the inflamation numbers have gone down will highly be...

Did you give any vitamins or supplements for her height or it is just her growth spurt?

Thank you for sharing your experience. I am hoping the Stelara will do the wonders for my son too. He is also taking Vitamin D and C.

Thank you for sharing your experience.

We had a meeting with the Dr today and she suggested to switch him to Stelara from Humira. Calprotectin readings did not improve much with Humira over the period of almost 18 months. I am hoping Stelara will works wonders for him. Does anybody who is receiving Stelara experienced any side...

Just want to share an update with all of you. My son is on Humira since May 2020, one shot every two weeks and six months ago he was also put on Methotrexate and Folic acid. He did not complain of any cramps from last 9 months and blood report is pretty normal but the number of inflammatory...

I am back to the forum to update. Humira started in May for my son, 40 mg injection every two weeks, it is working for him. Great improvement, no more shivers and no vomiting. Only two weeks ago he noticed some blood in the stool and it stopped after 3-4 days but started again three days ago. I...

He just started Humira last week. No other medication. No fever when he is having shivers and back to normal after two bad hours. No cramps and bm is normal, no diarrhea. I am hopeful all this disappears once Humira start showing the improvement signs. Are you trying any other alternate medicine?

Temp was 97.4°F. Abdominal cramp on scale 0f 1-0 was 3. So far he has mostly experienced this during the night times and today for the first had it in the morning &7 AM). Pain is normal around the navel area. I did inform his GI. What you were doing when your kid was having shivers? Not...

Does any of your kids have chills/shivers while having cramps? My son's body shivers a lot when he is having cramps and sometimes the cramps are absent but he had shivers. When that is happening he feels very cold and we have to increase the blanket layers. I am not sure if these shivers are...

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Thank you for sharing your experience. I would appreciate it if you can share the vitamin store name and the vitamins itself. We are leaning towards Humira for him as he is very young and the disease is at the initial stage, to use more aggressive treatment should keep him in remission...

Were you following any particular diet? My sone is avoiding milk, it just makes him gasy. He is consuming Ensure and his regular food. I am leaning more towards Humira after coming to this forum but still have my parental concerns about how he is going to respond to the drug.

Thank you for sharing your experience and glad to learn that your son has recovered. Kids don't even realized that they are stressing out and this disease creeps in. I am in kind of double mind should I start Humira or try other medicine. Seems Humira has worked wonderfully for most of the...