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Thank you for this information. I appreciate it. Like yourself, son has found stress and diet to be big contributing factors

Thank you for being so candid. This is helpful information. I am so sorry you have had such a hard time with this all, but positive to know you feel like your life is making progress now. Information sharing like this gives me hope there is light at the end of this dark tunnel. Once again...

Yes. They are checked prior to every infusion

Colifoam enema - this has not helped with rectal discharge issue. 2 pain teams have been involved over the last year in his care. We have engaged a new gastro who will be directing the next 2 investigations

I would like to say I had faith in the medical system and the capabilities of the Doctors attending our son, but I can't. Case in point May 2018, when a second hospital admission in 4 days for what was clearly an infection related to Crohns, resulted in septic shock. How can someone admitted by...

I believe diet plays a role in management of Crohns - I've seen it with my son. One gastro we were under was very pro-diet and put him on a FODMAP diet. We followed this quite strictly, and while doing so, it was the best period of health our son has ever had since his diagnosis. Over this...

Humira was trialled initially, but he didn't do well on that. He has been (prior to surgery) and remains on Remicade. 6MP was added 4 months ago to try to pull the handbrake on activity in the rectum. It appears it hasn't worked. I will post again to update once the endoscopy has been completed

Thank you so much for having the courage to share your story with me. Your courage shines though. I feel for you with the loss of your Mom from your life. She was clearly a wonderful selfless human who loved you dearly. Your relationship sounds similar to that I have with my son. There are no...

Removal of the rectum adds to theatre time, and given sons fragile state (was line call sepsis vs septic shock) and the implications of sexual function being compromised it was decided to leave the rectum. I think the distant possibility of a re-join was also part of the consideration, should a...

Originally posted in different section (as I am the parent of a 24yo diagnosed at 15, I posted in parents section) I have 2 questions for those with a stoma 1. Re rectal stump discharge. How often should this be occurring ? Son is 1year post-colectomy and bloody discharge has increased. 1-2 x...

Son (has)had fistulating crohns, with the rectum and anus being the problem area of main concern regarding fistulas. Under these circumstances, normally the rectum would be removed to eliminate recurrence of disease. Recommendation however was to leave the rectum, as removal of this lengthened...

Son was tested by Otakaro Pathways, and subsequently became a patient of Prof. Tom Barody (CDD, Sydney), using anti-biotic anti-map therapy. Unfortunately, our son is not one of the success stories, but there are many for whom this treatment does work. Research does back the theory, with the...

Hi. Chrons Ma back after a long hiatus, still in the role of caring for my son, now 24. Sadly, a total colectomy last June following a sustained period of sepsis that almost cost him his life. 2 questions please 1. discharge from the rectal stump. What is everyones experience with this please ...

Thank you for sharing with me too. It has been difficult enough to watch the changes Cameron has gone through aged 15 through 18. I cannot imagine what watching a child of 4 suffer would do to you as a parent. Your Grace sounds touched by her illness in a similar way to Cameron. The most...

My sons story began early in 2010. Weight loss was noticeable, as were the frequent showers. We put the weight loss down to a gain in height, and the showers a passing teenage obsession with hygiene. We were all struggling to cope emotionally at that time with the death of 2 family members and...