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Crohn's Disease Forum

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  1. Lady Organic

    methotexterate and alcohol

    Hi, I dont recall there is an interdiction to drink alcohol on methotrexate. Your medical history (CD + multiple surgeries) appears to me to be more of a reason to be cautious with alcohol. https://www.austingastro.com/2018/08/17/how-alcohol-affects-your-digestive-system/
  2. Lady Organic

    my hell

    Oh my god, I am so sorry you are going throught this. welcome to the forums. What happened to your previous doctor and nurse, retirement? Go to the hospital where you were diagnosed, ask for your entire file including colonoscopy results or any other tests results. You have full rights to get...
  3. Lady Organic

    Immunosupression and Covid Vaccine Response

    Anyone knows a study about immunogenicity and immunosuppression medication and the Single dose of Johnson n Johnsons? Still waiting on canada's acceptance of respecting the scientific protocol with immunosupression before receiving any shots...
  4. Lady Organic

    Immunosupression and Covid Vaccine Response

    How did it go with the letter, did they accept the 2nd dose in 2 weeks? Did you bring this one only or the advocacy letter along with it? https://crohnsandcolitis.ca/Crohns_and_Colitis/documents/About-Crohns-and-Colitis/COVID-19-and-IBD/CCC-COVID19-Vaccine-Letter-2021-03-18-FINAL.pdf EDIT* I...
  5. Lady Organic

    Yogurt as a cure for Covid-19 and Crohn’s disease?

    The title of the article is sensationalistic, not scientific:) Reporters often use such titles to captivate our attention, they exagerate. Most probably and interesting finding in this research is that yogurt (probiotics) can or could HELP for IBD and covid in slowing down the inflammatory...
  6. Lady Organic

    Immunosupression and Covid Vaccine Response

    Thanks! thats good to know! I am going to wait a bit so that this information gets to public health autorities so that I can be offered a better schedule of vaccination (not a 4 month wait for the 2nd dose). I dont mind waiting. I consider myself at very low risk of contracting covid. I've...
  7. Lady Organic

    Immunosupression and Covid Vaccine Response

    ''Transplant recipients receiving anti–metabolite maintenance immunosuppression therapy were less likely to develop an antibody response than those not receiving such immunosuppression therapy (37% vs 63%, respectively. Older transplant recipients were less likely to develop an antibody...
  8. Lady Organic

    Blood Pressure Medication

    Kiwi fruit can help with blood pressure: https://pubmed.ncbi.nlm.nih.gov/25483553/
  9. Lady Organic

    Immunosupression and Covid Vaccine Response

    OMG, that's really discouraging... Thanks a lot for sharing. At least we know we still have to be very careful.
  10. Lady Organic

    Pancreatitis from biologics?

    Hi Erinjk and welcome to the forum, I am sorry about your daughter issues. Generally speaking, Entyvio is known to have a better safety profile than Remicade and Humira. Just looked at the litterature and in 2018 was the first reported case of pancreatitis with Entyvio, so thats seems like a...
  11. Lady Organic

    Crohns and Common Variable Primary Immune Deficiency

    I understand, it makes sense the GI wants to coordinate with your other doctor. You'll see how it goes afterwards in terms of fallow up and emergency care. In the meantime, something interesting you could do to rest your guts is a course of enteral liquid diet. Enteral liquid diet is commonly...
  12. Lady Organic

    Crohns and Common Variable Primary Immune Deficiency

    Yeah, I am sorry to hear this. This is very long. Your disease has been diagnosed and is active. It should be a priority to offer you a treatment. In Canada or in the US we usually get treatment on the day of colonoscopy if disease is found. In what country do you live? Is this the only GI in...
  13. Lady Organic

    Crohns and Common Variable Primary Immune Deficiency

    So your next appointment to get the medication is in 2 weeks or in 2 months?
  14. Lady Organic

    New here and need suggestions!

    Hi E.W. and welcome to the forum! have doctors talked to you about enteral liquid diets? Mostly used with kids, this even help achieving remission in IBD when used as sole source of food consumed. Some adults and countries use it more often than others (UK or Israel for instance use it a lot for...
  15. Lady Organic

    Crohns and Common Variable Primary Immune Deficiency

    Hi MissMina and welcome to the forum:) I am sorry about this new diagnosis. Several people here have multiple medical conditions and have to see different specialists. Also, a lot of IBD patients take 2 immuno-supressants, I am one of those, if that can reassure you a little bit. I take...
  16. Lady Organic

    Question regarding isolated small bowel Crohns and progression (and diet)

    ... along with 2 clean scopes and biopsies and probably clean blood tests, I would not worry:) Stress does cause mild or (sometimes even bad) gastrointestinal issues in healthy people. Some people have headaches, stomach ache, insomnia or GI issues with stress or anxiety. All these symptoms...
  17. Lady Organic

    I feel like heartbreak has physically caused a crohn's flare up

    I'm sorry to hear you are going through this. Yes, a break up can be a very stressful event that could trigger a flare up. Every time I have a flare, my GI asks me if I have been under a stress. GIs know a big stress can trigger a flare or even a first flare. A couple of days seems quite fast...
  18. Lady Organic

    Aging with Crohn's

    @Scipio No possibility to delay the 2nd vaccination by a week? They say the interval should be in between 21 to 28 days. They are extending the 2nd dose here in Canada because we are lacking vaccines. Did you get the opinion of your GI for best time to get the vaccine while on Stelara? I am...
  19. Lady Organic

    Aging with Crohn's

    Very interesting, I googled the Book and it is still available! On the description: ''The ultimate consumer's guide to surviving a hospital stay, Take This Book to the Hospital with You, gives the inside information most hospital administrators would prefer that you not know.'' That last part is...
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