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Crohn's Disease Forum

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  1. Lady Organic

    Diagnosed in later life

    Hi, considering the severity of the main CD episode you got, I agree too that it is safer to be on a treatment. You are indeed in a delicate situation on choosing about doubling the current Humira or going on Entyvio, with the cancers going on. Regarding possible side effects, Entyvio is known...
  2. Lady Organic

    Keto

    Hi and welcome! I have searched the litterature about Keto and Crohn's and I didnt find anything. In the last 5 years or so, a lot of interest for diets research have been ongoing for IBD. Results are coming out slowly. If you want to start with something not too difficult, I'd suggest the...
  3. Lady Organic

    Dating and crohn's. Ah!

    Dont blame yourself for selfish idiocy. Take it this way instead: Its better to know now than 2 or 10 years after marriage and kids who is selfish and who is not a good person for a life partner, a true friend, or a true lover. People with heart, empathy and intelligence all combined will never...
  4. Lady Organic

    Anyone else deal with clogging ears???

    Are you feeling any better? maybe a dentist could help you. I recently had an episode of ear ache lasting a few days, going on and off. Luckely, I understood the problem: it was coming from my pillow while sleeping. It was too hard and pressing my ear. They call it ''Pillow otalgia''. I changed...
  5. Lady Organic

    Causes of Crohns any guess

    In my opinion: Specific genetics(genes) + a combination a variables often associated with Western culture and way of living (and same for most inflammatory chronic illnesses and cancers) such as : -lack of Vitamin D (sun) -lack of physical activity (sedentarity) -high level of stress and...
  6. Lady Organic

    Small bulge in belly button but no pain

    I second the idea of the possible hernia. have you tried pushing the bump inside softly (very light pressure) ? if its a debuting hernia, it could be popped back inside the belly.
  7. Lady Organic

    Can anyone make sense of these test results for me?

    A high Platelet count can be a sign of inflammation. This marker is always elevated in my reports when I have a flare up. Sometimes, its the only marker that can orient I am in a flare up when it is debuting or mild. https://www.medicinenet.com/what_does_high_platelet_count_mean/ask.htm As...
  8. Lady Organic

    Considering an elective Ileostomy Please help

    Hi there, I am so sorry about your issues and i understand all your concerns. I wish i could give inputs on ileostomy but I dont have much info aside that a J-Pouch is not an option if the rectum is diseased. I have already asked my GI about it just out of curiosity and he told me that this...
  9. Lady Organic

    Awful smell around buttocks but no fistulas

    Hi and welcome to the forum, Im wondering if your disease is fully under control now? Have you been declared in remission? Those sweats, could they be related to fever, which can be a CD symptom of disease activity? Only a colonoscopy with biopsy can confirm a remission. Improvement of clinical...
  10. Lady Organic

    Proton Pump Inhibitors Tied to COVID-19 Risk

    Along with previous Thread on PPI and microscopic colitis: Significant Association Between the Use of Different Proton Pump Inhibitors and Microscopic Colitis...
  11. Lady Organic

    Proctofoam long term?

    Oh yeah, definately and unfortunately. For oral prednisone, in my first years of disease, 30mg would put me in remission. For the same disease activity, years later, it had to be upped to 40 and even 50mg twice. And now even at this dosage, it takes more time for it to kick in and for me to...
  12. Lady Organic

    Proctofoam long term?

    Hi crohnsinct, I'm sorry to hear about your daughter ongoing struggles. I try to remember correctly this question I already asked my GI about using cortisone rectal therapy for the long term, if this was possible or if this would be detrimental to the colon. To my best recollection, I think the...
  13. Lady Organic

    Confirming the link between Celiac disease and IBD : meta-analysis

    https://crohnsandcolitis.ca/News-Events/News-Releases/Confirming-the-Link-between-Celiac-Disease-and-IBD https://www.gastrojournal.org/article/S0016-5085(20)30609-0/pdf?referrer=https%3A%2F%2Fwww.gastrojournal.org%2Farticle%2FS0016-5085%2820%2930609-0%2Ffulltext
  14. Lady Organic

    FECAL TRANSPLANTS: A Guide

    Profound remission in Crohn’s disease requiring no further treatment for 3–23 years: a case series Gaurav Agrawal, Annabel Clancy, Roy Huynh & Thomas Borody Gut Pathogens volume 12, Article number: 16 (2020) https://gutpathogens.biomedcentral.com/articles/10.1186/s13099-020-00355-8
  15. Lady Organic

    The Risk of Covid-19 in Immunosuppressed IBD Patients

    The Risk of SARS-CoV-2 in Immunosuppressed IBD Patients https://academic.oup.com/crohnscolitis360/article/2/2/otaa026/5820482 Abstract This is a rapid review of the risk of infection with SARS-CoV-2, the risk of symptomatic cases of COVID-19, and the severity of these cases in IBD patients...
  16. Lady Organic

    Vulval Crohn’s Disease

    I can only imagine how many women, even if this is a rare symptom of the disease, can suffer in silence or without answers. Some of the most common symptoms of vulval CD are itching, swelling and soreness of the vulva. These symptoms could be easily self- doctor- misdiagnosed as benign...
  17. Lady Organic

    Need advice again.

    Good luck with colonoscopy! Hopefully Humira will work well for you. I am on it too since about 9 months. Its not perfect remedy yet for me, but Im doing pretty good:)
  18. Lady Organic

    Fruit consumption may help with prevention of pouchitis

    ''Diet-Microbiome Interactions and the Risk of Pouchitis in Ileal Pouch-Anal Anastomosis '' https://academic.oup.com/ecco-jcc/advance-article/doi/10.1093/ecco-jcc/jjz136/5586643 From the article: '' The key findings were that in the subgroup without pouchitis at baseline [n = 39], there was a...
  19. Lady Organic

    History of perianal fistulizing lesions in patients with elderly-onset Crohn's disease: a population-based study.

    Natural history of perianal fistulizing lesions in patients with elderly-onset Crohn's disease: a population-based study. https://www.ncbi.nlm.nih.gov/pubmed/31637413 These results are concerning for old age. Only a minority of elderly patients with perianal-fistulizing seem to be treated with...
  20. Lady Organic

    Uncertain test results, but high CRP & Granuloma found

    Bravo! Thank you for sharing and keep up the good health!
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