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thank you everyone, your replies are so quick :) really helps to not feel alone, i'm feeling a bit defeated so thats much needed

he has been on sulfasalazine since elemental diet started, they are increasing the dose, i hope thats enough, but don't know how to tell if its working :( wonder if they will want to try something else, but what and i worry about the side effects, the elemental diet worked, will they do that...

:( thanks 1800+ sounds really high to a newbie like me, any thoughts?

Hi me again, my son who DOES have confirmed crohns is 3. His original calprotectin was 650, it went down to 154 after elemental diet but is now 1800 after introducing food, very slowly. no symptoms apart from constipation, then slightly loose very occassionally and a bit frequent (4 times) and...

thanks all, its with his brother's history it had me worried, that and the lab report says normal is 65, but googling about i see for little ones its higher. coeliac screen is fine, he has had numerous diet changes, medications, couple of scopes etc. something is going on, and how can i have 2...

thanks, maybe the lab didn't post the paediatric values with the result, it seems it might be an ok value as he is 6, still doesn't explain anything though! thanks for commenting, if anyone has been told different i'd love more feedback :)

Hi would be really grateful for some chat :) my youngest son has recently been diagnosed with crohns over the summer and started with obvious symptoms last Easter (blood). However my middle son has had bowel troubles his whole life (born with lymphangioma, surgery, chronic diarrhea, food...

is it too big to attach using the paperclip icon at the top? def not type it out!:eek: not keen to put my email address on??

yes please :)

if you are still on here i'd love an outline or link to the plan. about to reintroduce food to my 3 year old with crohns and not so helpful dietician

thanks everyone for your replies, i was touched. still feeling a bit teary its like a bereavement a bit in that it keeps hitting me :( great ideas about the toy animal. i might get one rigged up with a tube later, i know i have a story about ruby the rabbit around somewhere from my other son...

just want some sympathy and support really.:ghug: i have an older son too with bowel trouble but not crohns so we have done some of this journey before, eg testing and treatment but differently. i'm struggling to get around the finality of the diagnosis and cross as it was such a battle to get...