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Crohn's Disease Forum

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  1. K

    What is YOUR weather like today??

    7 degrees Celsius in Belgium, but I'm in flare so i really don't care.
  2. K

    Stelara not working after 5 months.. lost 25kg

    Today I got 2nd opinion. She suggested therapy switch to Remicade & Imuran because of my symptoms. 5 months waiting time is a lot, she said.
  3. K

    Stelara not working after 5 months.. lost 25kg

    My frequency is 8 weekly - 90mg. At start, I only had inflammation in ileum/caecum. The doctor want dose escalation only if I respond, not before.. I have heard of EEN, but never seen this for adults (I'm 27). How does this work? I use Ensure 1x a day to get extra calories. It's for me...
  4. K

    Coombs Test anyone had one?

    I tested positive on Coombs's Test. They have investigated my bloodwork and said that I have auto-immune hemoloytic anemia (warm). It can be caused by crohn but will go away when the disease is under control. It destroys your hemoglobin too early. I use Stelara
  5. K

    Stelara not working after 5 months.. lost 25kg

    Hello, I would like to get advice from crohn's forum. My story: April 2020, I have got itchy skin (without rash) and diarrhea(6x/day). After 3weeks I have been hospitalized with respiration problems, severe diarrhea (8x/day). After urgency colonoscopy, they found ulcers in ileum/caecum and...
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