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Crohn's Disease Forum

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  1. N

    Slight Flair-Remicade

    Thank you so much once again for your support everyone. She does have UC and is located in the lower large colon. Does adding MTX add any risks of infection or long term complications?
  2. N

    Slight Flair-Remicade

    Yes last bloodwork from 8 weeks ago was all normal. No clinical symtoms at all other than slight constipation but thats the 1st she seemed to have that. We teased her because it only seemed to happen when she knew she had to poo in a hat. Other than that she would always go poo once a day or...
  3. N

    Slight Flair-Remicade

    Hello, my 15 year old daughter has been on Remicade for about 18 months every 8 weeks and all blood work and past stool calprotectin has been normal. Her last stool calprotectin a few days ago showed no blood but hard stool and she hadn't pooed in 7 days so I think there was constipation. The FC...
  4. N

    Not Sure

    Ive read the Remicade can cause pancreatitis and ive also read that remicade can be used to prevent it or stop it. Confused!!
  5. N

    Not Sure

    Hello everyone, an update on A, she has been on Remicade for awhile now with no issues. However she had a MRCP done on her pancreas since she has EPI and a recent MRCP showed her pancreas smaller than usual. He recent scan shows Atrophy of the pancreas, it has gotten worse and Dr diagnosed her...
  6. N

    Not Sure

    Thank you everyone again for all the info. Much appreciated. :)
  7. N

    Not Sure

    I wanted to add she has had no symptoms, stool is normal, no pain, occasional blood in stool but not much, no mucus. Sed-Rate was normal at 17mm/h, the only other number which Dr. didn't seem concerned about was Neutrophils was just above normal at 62% - Reference Range: 31 % - 61 %. However...
  8. N

    Not Sure

    Hello, just a few questions to see if anyone has had this happen? A, had her 6th infusion yesterday and they do routine bloodwork every time. He C-Reactive Protein came back high at 1.93 mg/dL (High) - Reference Range:0.06 mg/dL - 0.81 mg/dL. Her stool calprotectin she had done about a month...
  9. N

    Not Sure

    Thank you again for the info. :-)
  10. N

    Not Sure

    Thank you as always. From what we have gathered... bright red or more of a maroon color? - Bright Red Is it just on toilet paper or does it also drip into the toilet? - Just on paper Is it mixed in with he stool or just on top? - Just on top we think Is she having solid stools or still...
  11. N

    Not Sure

    Hello, its been awhile since I posted. A has been on Remicade for about 5 months now. She has had no side effects. Her Stool Calprotectin was 1870 before remicade, she has had occasional blood in her stool since remicade. Her Stool Calprotectin test that was just done last week shows a score of...
  12. N

    Not Sure

    Hello, its been a little while since I last posted, we do ask our 14 yrd daughter every once in awhile if there is blood in her stool. As she seems to not tell us when she should. Its been about 7 weeks since her last Remicade infusion. She had the first one week 0, 2nd one at week 2, 3rd one at...
  13. N

    Not Sure

    We go the Remicade levels back from Dr. Kim and she said they are excellent.
  14. N

    Not Sure

    Thanks again for the info. Yes we see Dr Kim at Pitt. She is great and is scheduling a cal pro and maybe test for C-Diff just in case.
  15. N

    Not Sure

    Does bleeding indicate a flare or inflammation? Sorry still learning what these symptoms all mean. I think I read somewhere that their child will have blood every once in awhile but scopes show normal and no inflammation. She has not seen any mucus, at least she didn't mention it.
  16. N

    Not Sure

    She is not bleeding a bunch, not like its just uncontrollably coming out, just shows up in stool a little. She was on a rectal therapy before remicade, but was taken off it when remicade started. Does your daughter take a biologic as well ? Fro what I remember she does right ?
  17. N

    Not Sure

    Thank you, yes her GI is aware of the issue and just awaiting the remicade levels to come back which should be early next week.
  18. N

    Not Sure

    She did have blood in stool last night too. :-(
  19. N

    Not Sure

    I didn't even think about this until my wife brought it to my attention. "A" had two vaccine shots on the same day as her Remicade, influenza virus vaccine and the pneumococcal 13-valent vaccine. Could these vaccines cause her to go into a flare which would explain the blood in her stool that...
  20. N

    Not Sure

    Sorry yes she did have diarrhea in the beginning, she is 14 years old and has started menstruating about a year ago, but its not her time of the month so we can rule that out.
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