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She had not had any symptoms other than blood in stool since she's had UC diagnosed 18 months ago. When she started Remicade 6 weeks ago, the blood she was having in her stool went away right away. Thats why I was concerned seeing there was blood in her stool last night. But weird is she pooped...

So you are saying that the day of the infusion can sometimes cause blood in stool? If so doesn't that show possible inflammation and not in remission ?

OK, so A had her 3rd remicade infusion yesterday, it was the 4 week mark. She also saw her GI Dr. before the remicade and all has been going good. We got home that evening and A had blood in her stool. She ending up going again about 2 hours later and there was no blood. We contacted her GI Dr...

Great to hear

Great, thanks for the info, how long has your son been on Remicade?

A had her first Remicade infusion 2 weeks ago and her symptoms of blood in stool cleared up right away. Looks like the Remicade is already working :) . She is getting her 2nd infusion as I type.

Thank you all again for the info. Greatly appreciated :)

I asked her GI about the MTX and her response was "As for the methotrexate, I may hold on starting this until we get the Remicade started and can check levels. We may be able to use Remicade alone." So what does she mean about checking levels? I assume this is done through bloodwork every so...

Is Methotrexate always given with Remicade or is it only when they realize you could be developing antibodies to it? From what I understand, they take blood work at every infusion to monitor this and of course other stuff.

How about Remicade with MTX? Is there any increase with those two combined?

One thing I keep seeing on commercials and reading about is an increase risk in cancer while being on a Biologic like Remicade. But I also have read that there is no proof that this is the case. Does anyone have any thoughts and/or input on this?

Thank you for all the info my friends.

A has been homeschooled anyway, this year she started cyber school.

Hello all, Its been awhile since I posted last. Its been a little over a year since A was diagnosed with IBD. Since then she has been on Pentasa and an enema. Her Dr took her off the enema so see how she would do. She was good for a few months and started to show blood in her stool and stool...

Thanks again for all the support. We are going to talk to the GI/Pancreas specialist in about 4 weeks and go from there. We will see what other tests we can do to try and find out whats causing the levels to jump. We are also starting her on a gluten free diet as it doesn't hurt to try that and...

We do have an appointment with a pancreas specialist in about 4 weeks. Our Dr. is working on getting us in sooner though.

We talked to Dr. Kim at Childrens Hospital of Pittsburgh today because of the high Lipase levels. Celiac was filled out as she was tested for that when they did the scopes back in July. Dr. also said... “I spoke to my colleague, who is the expert and director of our Pancreas Center. We wonder...

Thank, I read that but had a hard time understanding it..LOL

Update: As you know her MRE and CT scan were normal. However her recent bloodwork checking her Lipase levels have shown them to go up even more to over 3000. I am lost as to what can be causing this. She has been off the oral Pantasa for over 2 weeks and the rectal for 12 days. Does anyone have...

Oh i forgot to mention, she has had a few minor nosebleeds in the past 3 days. Not sure if this is normal with IBD? We do live in PA so the air is getting colder and dryer this time of year so not sure if that has anything to do with it.