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thank you.

Update, daughter had the CT scan back in AUG which was normal. This was before her Lipase levels were elevated, the CT scan was just to make sure there wasn't any inflammation in the pancreas and surrounding areas. Since her Lipase levels have risen to over 2000. So she had a MRCP down last...

Thank you so much for the info. It means a lot

She is due for the fecal cal protection test any day now.

It does make sense and thank you. yes the 5ASA oral med was stopped on Sept 30th because of high Lipase levels but the rectal meds were not stopped. Her last blood work about a week ago showed the Lipase levels doubled so Dr had her stop the rectal meds as well. We just got back from her MRCP of...

So what’s everyone honest opinion on Biologics? Are they the most safe drug for IBD?

Her latest blood showed her Lipase is up over 2700 so they are having us stop the enema and redo bloodwork in a week and a half so see if that level comes down. Dr. is assuming the Lipase level is going up due to the Pentasa she has been on. Looking at the history of bloodwork. It gradually has...

thank you

I have been thinking if it’s just better to push for a biologic ? What’s everyone’s thoughts on that ?

Thank you so much

LOL you should

Thank you, what do you mean by blip ?

Thank you, I know I may overreact but its just the worrying that gets to me. I wish I could get to the spot I was in a month ago when I accepted the dx and she was doing well on her meds. Now with this new thing where she might have to change meds is what’s got me worried.

Most of you know I had a hard time dealing with the DX as my anxiety got the best of me. But after a lot of you taking the time to post here to help me made my anxiety and acceptance much better/easier. However now with this pancreatitis due to her meds has me back to the dark place! Now I am...

thanks for the info. As for the birth defects, what if down the road she wants to have kids. Would it just be a matter of going off the Methotrexate until after the baby would be delivered. I know I am thinking far ahead as she is only 13 but I like to think long term.

Thank you

Thank you as always

last we were told was leaning towards UC. We forgot to ask the dr today about the dx. Always think of a bunch of Qs after we leave 😟 so far all meds have been covered.

also they have not dx her with crohns yet. It’s still undetermined.

thank you as always. Do you have any recommendations on a different med besides biologics ? The Dr Kim at CHP was awesome by the way. She said biologics would be the last choice.