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Hello everyone, its been awhile since I last posted. My daughter had her checkup today and the bloodwork is showing high levels of Amylase. According to the Doc, this means her pancreas is not right. However daughter is showing no signs of symptoms. So she thinks its due to the 5 ASA meds she is...

Lizzyg, thank you so much for sharing your story, I love to hear stories like this and very happy your daughter is doing well. Since we caught ours early I hope we can achieve the same remission and keep it that way for a long time. So far the meds seem to be working and she is still feeling...

Thanks again so much. :-)

Hello, do you have links to her social media ?

Hello, thanks for checking in, we have been concentrating on giving her the meds. The CT scan came back normal so thats good. We see a new doc in a few months. Its a girl Dr with I think the last name of Kim. My daughter has had no symptoms and the blood in the stool according to her has not...

Okay, thanks for the info once again.

Thank you 😁👍🏻

I guess I was wrong, it’s a cat scan not a MRE

Thank you so much for following up with me. We have been really busy lately with vacation and now the Dr apps. We are currently sitting in the room waiting for her to drink the funny tasting liquid before here MRE. Here enemas have been going fine. She has not complained one bit and no side...

Hello Jo-mom, thanks so much for your story and the kind and encouraging words. Its much appreciated and you are right, this forum has been so much help already. A lot of kind and knowledgeable people here. :)

Thank you so much, your kind words and info always helps. It is a lot to take in. I’m just really nervous and anxious about this new thing in our lives called crohns. I always think a lot as why us? Why my daughter? What is the changes and she got it ? But it’s here now and we have to deal with it.

I have had a hard time dealing with this news. I suffer from anxiety and am a constant worrier. My wife always tells me not to worry so much but I can’t help it. It’s just something that is in my head. I’m always thinking of the worst and makes the present day miserable. I just keep worrying...

We haven’t given her the enima yet since it needs prior authorization from the insurance. Looks like Monday will be the first day for it. Thanks for asking.😁🙏

The name of the dug is Mesalamine

Hey all, got back from seeing the Dr. and he still does not have an official dx but there is defiantly IBD in there. She has severe inflammation in the rectum part and is being put on a steroid anima for 7 days and a regular anti-inflammatory anima for 30 days and will reevaluate with stool...

Thank you so much crohnsinct and my little penguin and to all of the other that have helped. This is so new to us and we are expecting to hear she has crohns tomorrow. I’m not gonna lie. I’ve been losing sleep and depressed since we have got the news that it looks like crohns. I’ve been doing...

So is something like Humira or Remicade a life long drug or is it for getting into remission and then the person is taken off it ?

Yes she was seen by a GI prior to the scopes. The same guy that did the scopes is who we are seeing this Thursday.

Hello, my 13 year old daughter has what looks to be Crohns, but seems to be at an early stage of it with mild inflammation and no pain, only the occasional blood in stool. My question is, since it was caught early, is there a better chance of remission and any further damage to her...

Yes I am in the U.S. We have been going to the Childrens Hospital of Pittsburgh. We have an app this Thursday morning.