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I've been on Humira for 5 years, but the psoriasis side effect is eating me alive. Itching spots happen all over my body, and sometimes they turn into pimple like things that get hard and sore as hell and then pop, sometimes getting infected. My scalp itches and flakes like mad even after...

Among the side effects I have from Humira is psoriasis. Sometimes it is aggressive and very bothersome, sometimes not. I went through several dermatologists before I found one who had a topical medicine that worked. Ironically his first suggestion was Humira. How does it help some people and...

With all this talk about the cost of the various biologics, I found out two things this week: 1. Humira now costs $4700 a month for two shots. When I started on it five years ago it was $3200. IMHO this is highway robbery on a world wide scale. 2. I was just today approved by Abbvie's...

Hi Merv and welcome. Tragically your story is typical of all of us. I have a couple posts on this board that tell my story, but briefly: mine started in 1982 when CD wasn’t known as well and it took me six months to get referred to University of Chicago. An abscess near my appendix burst the...

Thike1966, I had a tortuous journey to my diagnosis as well, losing 50 pounds or more over six months, and I wasn't a large person to start with. Finally after several visits to University of Chicago they found the problem on an X-ray table. The surgeon came in and said I had an abscess that had...

Aren't there pretty advanced theories about Crohn's being caused by our fatty Western diet? That it doesn't appear nearly as often in the East? I've also been researching the MAP virus theory here and other places. It suggests that cows milk has some kind of virus that causes Crohn's. Asked my...

Personally I would seek treatment sooner than later; arrange to see a GI at least twice a year; and I would trust him / her. My original doc said Crohn's "is a tiger" so you have to stay vigilant. Good luck if you find that self medicating or special diets work for you, as some here have...

aweitzm1, I'm surprised your doc put you on a biologic so quickly. I was led to believe it was a "last stand" med you resorted to only after you tried everything else. I was on Pentasa a long time until I developed two strictures a couple years apart. Plus, there's only a handful of biologics.

I've been told its all about inflammation. After many years of occasional flairs and other Crohn's problems, I had two strictures in a couple of years. Given my history with other meds, my GI suggested Humira. Since then (about 4 years) I've avoided more strictures and most every other problem...

I've been on VSL #3 for 5 or 6 years. Taking one capsule a day, a bottle costing about $50 lasts me two months. I think it helps me in a variety of ways, but the immunity boost is what gives me some peace of mind. I've had a variety of blood tests that tell me I'm anemic, or low on potassium...

Thanks, Karen. The bottom line with Abbvie is, like all Big Pharma, let's milk insurance companies for the most we can for as long as we can. I'm covered as long as I'm working and have group coverage. What's that extortion doing to my employer? Then once I retire everything changes. According...

Msmith, I missed a question you asked about whether Humira "made it worse for me"? Humira has stopped the strictures I was having about 5 years ago. And I suppose it has stopped larger CD flare ups that can happen. It is keeping the tiger down. Nowadays my GI says, are preventing these things...

MSmith, make sure you see your GI every six months, and talk to him about your concerns. He should be able to explain all your questions. For one, he should have told you folic acid and vitamin B12 may not absorb in your Crohn's system like they should. I keep sub-lingual (under the tongue)...

Strange about Humira: though it's prescribed for 11 different conditions, I don't think it can handle more than one at a time. I take it for CD, but it has exaggerated my psoriasis and significantly effected my joints. Ironically it is also prescribed for those two problems. My dermatologist...

It helps me to get out of my own head and my own health, and it always helps to discuss your worries with others. I hope an outside this board subject doesn't break any rules. Many other people have intimidating health concerns, including my daughter Emily. She's had headaches everyday since...

After 6 months of fevers, diarhea and misdiagnosis, I had an abscess that broke and ended up with an emergency ileostomy 35 years ago this last Easter weekend. I heard all the horror stories of what CD could become, but I was lucky and got reconnected 6 months later. No surgeries since, though I...

My system is so fast I eat breakfast, finger jello for lunch at work and come home and start the prep at supper. I've flavored the MoviPrep with Lemonade occasionally. It also helps to start a really good thriller book, or a blood and guts Die Hard movie to keep your mind elsewhere.

I had some problem with psoriasis suddenly coming quite strongly about 15 years ago, and dermatologists gave me a few things to try. They didn't help much, but over time it seemed to go away. Fast forward to about four years ago when I go on Humira, and the psoriasis came back like...

Do you ever feel overburdened by this monster we live with? Does it ever seem unfair that your family is effected? That sometimes your job is effected? That you have complications that make things even worse? Here's a song for those times. https://www.youtube.com/watch?v=CyOdoQ-HqM0

Are you having any fevers, cramps or weeks of diarrhea? I've been on Humira three or four years. I feel like I've been stabilized but by no means am I Crohn's-free. I'm not having strictures, after experiencing two of them in three years. But I still can't tolerate milk, coffee or ice cream...