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Crohn's Disease Forum

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  1. C

    I am not so brave anymore...

    Hey Pen, i am a little late getting on here but just wanted to say i really hope you manage to get things under control with all these tests. I was one of the ones you were helping out, calming me down about my first scope, and wanted to say thanks so much, especially now as i know you were...
  2. C

    Azathioprine

    Hey kenny, try not to get nervous about it before you even start...i know i know easy to say. But try to think positively - this could be the drug that'll finally get things under control! Also, not everyone gets the side effects, i certainly did not have any nausea or feel like not wanting...
  3. C

    I get to start Prep on Wednesday!

    Ugh, not looking forward to all that air again, seem to remember it being distinctly not fun from the sigmoidoscopy. I was in hospital tho so at least not really *public* - just my old lady roommates on the ward!! Had forgotten about that, it's so rubbish that even after the procedure, the...
  4. C

    I get to start Prep on Wednesday!

    Just as well i live in a really small flat and you're never more than about 5 steps from the bathroom then! At least i'm laughing about it all now instead of panicking tho, thanks guys! Will i still be laughing tomoro morning...probably not! I'm pretty jealous about this Calmoseptine you...
  5. C

    I get to start Prep on Wednesday!

    Eek! My packet says i should expect, shall we say, movement, to start "at any time after taking a dose" and to "please ensure that you have access to a toilet at all times"!! Had a giggle to myself of visions of swallowing the cup down and immediately having BMs like a fire hose going...
  6. C

    I get to start Prep on Wednesday!

    Thanks tamesis, not looking forward to the orange and salt combination but at least it's not gallons of the stuff! Hope you get on ok with it all, keep posting so i know what to expect in 12 hours when i start on mine! Just had last proper meal and i think i already feel hungry... *sigh*...
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    I get to start Prep on Wednesday!

    Thanks Jetta. Hopefully i'm worrying about nothing and will all be fine. Just fear of the unknown i guess. I had a sigmoidoscopy when i was in hospital being diagnosed but was no need for prep as i hadn't eaten in days! Not sure if bf will be there when actually wake up (booklet says i could...
  8. C

    I get to start Prep on Wednesday!

    Thanks LMV - don't have anyone that could drive so public transport it is i'm afraid. My info from the hospital did say no public trnasport but i assumed that meant after rather than before. Actually, i'm planning on getting a bus home too but my boyfriend will be escorting me back so...
  9. C

    Dx to 5 year club

    I'm in...diagnosed April '09 - wasn't that a fun Easter Sunday in hospital instead of eating chocolate...hmmmm, maybe not
  10. C

    I get to start Prep on Wednesday!

    Good luck Tamesis and Muse! Not to hi-jack but i have my first ever colonoscopy on Friday so starting prep tomorrow morning...not looking forward to the lack of food but i too have the PicoSalax so at least no worries about forcing it down (fingers crossed!). However, i wonder if some of you...
  11. C

    Ladies on birth control...

    I got a contraceptive implant inserted. The family planning doctor advised me that oral contraceptives would be fine, in my case certainly - i have never had a surgery or anything. However, i was concerned about absorption and just didn't feel happy/trust the Pill. There's loads of options, i...
  12. C

    Azathioprine

    Hey Robbo, I've been taking 75mg Aza since May and can't say i have had any bad side effects but maybe i'm just lucky. It's keeping me off the loo 15 times a day and that's the important thing! I started off with weekly blood tests, then fortnightly and am now down to monthly - i'm quite...
  13. C

    Yikes! Anyone had EYE problems with Crohns?

    I had uveitis in both eyes prior to being diagnosed by Crohn's - apparently it's one of the more common extra-intestinal symptoms. Both eyes were red and very sensitive to light, making them sore but kind of bruised-feeling sore rather than the eyeball itself hurting. No droopiness though... I...
  14. C

    So who's having a hard time getting the H1N1 vaccine?

    I've had mine! Went along for my monthly Azathioprine blood test yesterday and my friendly nurse offered it to me...felt it would be rude to turn her down. Got the regular flu jab at the previous month's test. No ill effects so far except a *really* sore, bruised feeling arm...and i'm not...
  15. C

    Uveitis anyone?!

    hey, i know i'm a bit late posting on here but didn't see it before...anyway just wanted to say i feel for you! Ugh, i had uveitis pretty much continuously for about 4 months before my crohn's was diagnosed. Sting-y eye drops on the hour every hour is not fun... Did the doc give you...
  16. C

    Travelling

    From NHS website... "Your EHIC will allow you access to the same state-provided healthcare as a resident of the country you are visiting. However, many countries expect the patient to pay towards their treatment, and even with an EHIC, you might be expected to do the same. You may be able to...
  17. C

    Crohn's and Surgery

    I remember reading things when i was first diagnosed that a high majority (can't remember the exact numbers) of Crohn's sufferers would require surgery at some point. I spoke to my consultant about it and he said that the way they tend to treat these days lessens the likelihood of needing...
  18. C

    Decisions, decisions - aaaarrrrrgghh!

    Just wanted to quickly let you know that i am on azathioprine (imuran) and have been since just after leaving hospital. My consultant told me that he didn't think Pentasa would be enough to hold things at bay and recommended Aza as the best way to go. He said it is better to attack the crohn's...
  19. C

    Hi All

    Thanks for the welcome everyone! Kromom - the eye issues are all cleared up, thank goodness. I had been on steroid eye drops...and when i started the oral prednisolone that cleared it right up - i had an appointment with an eye consultant after being discharged from hospital and was able to...
  20. C

    Hi All

    Thanks teeny. Don't worry, no plans to stop ANY pills, i know better than that!
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