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My son just had his third infusion today. We followed the same schedule of first dose, two weeks later dose 2, four weeks later dose 3. By the second dose his ESR went from 50 to 14. By dose 3 he had put on 10 pounds. We haven't gotten the blood results from today yet, but I am hopeful his iron...

My son is a newbie to this Crohn's situation. He is a bit of an oddity: he is huge and always has been. The dr. suspects that is why we didn't notice that he hasn't grown in a year. He was diagnosed in June of this year and started Remicade immediately-- his case is pretty extensive, with ulcers...

For those of you with more than one child, is there a way to "test" other siblings for Crohn's? If so, did you have your other children tested? My son was diagnosed 5/2012 and is currently on Remicade and appears to be improving. My daughter has been complaining of abdominal pain, fatigue and...

My son had second Remicade infusion this morning. He was nervous, so the initial needle stick didn't go as well as last time, but other than that, it went well. He gained 2 pounds (of course he had been to two fourth of July parties the day before...) The nurse emailed me to tell me his ESR and...

Hi, My son will be 11 in Sept. dx with Crohn's in May. Just started Remicade. He has been really mopey lately. Is it tiredness, the meds, pre-teen years? Is this something (else) I should worry about?

Jmckinley-- I will ask about the HACA. I heard the nurses talking about a blood test (I couldn't hear the exact letters, but it was A, something, A, so maybe they were already doing it. We had shaped poop-- first time in 3.5 months. Trying not to get too hopeful, but my son is really happy this...

First Remicade infusion went well. A weight was lifted off his shoulders. He is no longer dreading the IVs because the first one went well. Then he had an MRE done today. That did not go as well. It was done at a regular radiology center, so nothing was kid-friendly. I just hope he doesn't have...

When the nurse called with lab results, she explained that fecal calprotectin above 150 was elevated and that to a certain degree it was indicative of level of inflammation. You can't compare two people, but you can compare a person's results. At the time, my son's was 1275, which is why the...

Worked for me. Very informative. Thanks!

Thanks for all the quick replies. I will update Thursday after his first infusion. Is EN something the doctor prescribes, or is it something I do on my own? I"m guessing those on NG tubes must be prescribed, but the shakes sound like something I manage? This weekend we noticed he had a good day...

Hi, my 10.5 year old son was diagnosed 5/31 with severe Crohn's: ulcers spotted from duodenum to rectum. The first symptoms we noticed were diarrhea and stomach pains. These started in March. Looking back, we now realize that his lowered energy and "sad" affect were probably due to this as well...