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I am a little confused. You were told to taper 20mg every two weeks? If so, that does sound kind of fast. You could try going up to the full dose and doing it slower, however, just make sure you have your doctor's approval on this. Also, are you on any sort of maintenance medication? If not...

I was on pentasa for almost 6 years. Pentasa worked perfect for me, no symptoms at all. Throughout that time, I always thought that my Crohn's was fairly mild. After a while, I decided to try to stop taking it since I felt so good which was a big mistake. I ended up back in about a year long...

Jo-mom and Mountaineer01, from what I have come accross, it is not a live vaccine, although, I am still going to call and ask my GI doctor about this.

Good to know. Thank you for the replies Jo-mom and emmaaaaragh.

I am glad I am able to help you, but I think you are being mislead. You may be getting proteins and fats you need, but that does not mean eating entirely meat is good for you in the long run. It can lead to all sorts of trouble ranging from heart disease to possible cancers. Also, I always...

In the state of Illinois, it is required for me to receive a meningitis vaccine before school next year. Now, I have heard that you have to be careful about your medication and vaccinations. I am currently on Remicade right now, and I was wondering if it is safe to receive this vaccine while on...

Carnivore diet? That sounds like a terrible idea and is probably part of your issue. I would urge you to cut back on eating meat and have a more balanced diet. It is also why you probably have fatty stools. The other part of your issue is your medication. It is not uncommon when you taper from...

NuttyGuts, glad to hear from you. Also glad that you are doing well. I think the biggest thing about this disease is that if you feel good enough to do the things you like and you are happy, that is all that really matters.

Remicade infusion number six was today. Still working great for me. The only problem is the darn nurses not being able to get the IV in my veins. And I was definitely not dehydrated. I drank three to four full glasses this morning and the night before. The one nurse poked me 3 times and gave up...

If she is in remission, what is the point of changing biologics? Has she gotten a colonoscopy to show that there is inflammation and other issues? What I would be concerned is that if she is does not have good results from Stelara, she would most likely not be able to go back on Remicade due to...

Never had a colonoscopy while on Remicade, but I think it does not matter just as long as your colonoscopy is not on the same day as your Remicade infusion.

Yes, 10mg weekly taper does sound fast. Last year, I dealt with a year long flare where I was originally on pentasa, and it eventually became ineffective for me. So, I had a colonoscopy, and my doctor decided to put me on 40mg prednisone to calm down the flare and 50mg 6mp for maintenance. My...

Are you on any maintenance medication? If you are not on a maintenance medication and try tapering from prednisone, you are very likely to flare again.

You were taking 9mg of budesonide and just suddenly stopped? That is a very dangerous thing to do because budesonide is a steroid. When you take steroids, your adrenal glands stop producing cortisol since you are getting cortisol from the steroid. When you suddenly stop taking steriods without...

Yes, a colonoscopy is a great way to tell if there is ongoing inflammation inside the intestines. Sometimes a person may feel ok, but there is ongoing inflammation in their intestines in which they would need to switch to a different medication. Also, blood work is another good way to check...

You should never stop your medication unless approval by you doctor. I did the same thing. I was on pentasa, 4 pills a day and I stopped taking it because I didn't have any symptoms. That was the biggest mistake I made, because I ended up flaring and now I am on Remicade, another biologic...

I have been in remission since August so it has been about 6 months. Great information Kas8173. Definitely an interesting read. I have about half a bottle of 6mp left. I have been taking 50mg.

Ok, first, make sure you drink plenty of water and be hydrated before your infusion as this will make it easier to get the IV into your vein. You will check in and they will get you situated. They will pre-medicate with benadyral and tylenol to prevent reactions to the medication During the...

From what I know, it is best for any infections or colds to clear up before your remicade infusion, since this drug suppresses your immune system and would make it harder to fight off infections.

Exactly! I totally agree!