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I am a high school cross country runner, and this is one thing that I have learned with running. When my crohn's is not under control, my running is absolutely terrible. But since I have started Remicade and got everything under control again, I've broken my 5k time several times this past...

I got to keep breathing. Because tomorrow, the sun will rise. Who knows what the tide could bring? From the movie Cast Away

Another thing is that the longer you are on steroids, the slower and more careful you have to be when tapering. The symptoms you are describing sounds a lot like steroid withdrawal symptoms. Let your doctor know if anything changes or worsens.

Wow, that's a long time. At what dosage were you at? When you are on steroids for long periods of time, you always have to watch out for adrenal insufficiency. Also, steroids can have some very nasty side effects. It sounds like mesalamaline is not doing you much so you would either end up...

Wow, 15 times! At my last Remicade infusion, the nurse poked me four times and I thought that was bad. Then again, I was a bit dehydrated. Where did they try to insert the IV?

KarlB, I think I will have to mention this when I visit my GI next time. Thank You

Jonny84 and Lisa, that sounds really promising, thanks for your feedback. Again, just trying to see what other people's experiences are with this.

Thanks for your replies. This is my first time on a biologic, and the Remicade has been working perfectly. I just want to play it on the safe side because I don't want my body to form antibodies to the Remicade.

I had a question about the combination therapy. A little background info; I am on Remicade and 6mp, and the Remicade has worked great for me, no symptoms at all. I am also on 6mp which I know is to help prevent antibodies to the Remicade. My question is do I have to continuously be on the 6mp or...

You never know. I have heard in some cases that it can take up until your 4th infusion until some see improvement. It really just depends on the person and how their disease responds. I would talk to your doctor and see what he/she thinks. Glad I could help.

For me personally, two days after my first infusion, I felt totally normal again. I think some say it can start to work immediately, while others say maybe one to two months. If you are vomiting and having abdominal cramps, and have to go back up on your prednisone dosage, I would move on to a...

I don't think pentasa is a drug that will necessarily put you in remission unless you have very mild crohn's. Typically most doctors put people through a course of steroids first, either prednisone or budesonide, two of which I know, then they put you on a maintenance medication. It is not...

For me, I had a sharp pain in my lower right abdomen that would happen occasionally. I would have loose stools close to diarrhea with blood in it. I never ran to the bathroom 20 times a day, but it was more frequent than normal like 2-3 times a day. I did not feel like eating much as I was not...

Maya142, yes, I have learned that the veins in my right arm are the "good" veins and the ones in my left arm are "bad" veins according to what the nurse said. I will make sure they rotate arms. NuttyGutts, glad to hear from you too! Glad you were able to make it through Thanksgiving. I always...

Hey everyone, I had my 4th remicade infusion today, and everything is still going perfectly. No symptoms, normal stools. The one thing I did learn is to be hydrated for my infusions. They had to poke me four times in order to get the IV in me. As for my fitness and cross country season, I had...

Hey everyone, had a question for all of you that I want to share. What is the longest time you have been in remission with no symptoms or with very minor symptoms? For me personally, the longest I have gone was 5 and a half years with being just on pentasa. I had a flare up earlier this year...

I agree with Scipio. I would get more testing done, and see the results from your tests, and then decide. I think your doctor might have you try something along the lines of an immunosuppressant first before going to biologics. Some doctors like the bottom up approach while others like the top...

lily3308, I think different types of exercises will have a different affect on your fitness, which will determine your resting heart rate.

If you gained weight, you are probably fine. I would be more concerned if you were losing weight. They would typically check your blood work to see if your dosage needs to be higher or lower.