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Crohn's Disease Forum

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  1. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Thank you @my little penguin still the same with 3-4 diarrhea per day. Joint swelling the same. Wait to see Rinvoq+methotrexate results.
  2. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    @Maya142 Yes part or whole of Rinvoq tablet. I mean both Crohn's with daily 3-4 diarrhea and arthritis and swelling in his knees, wrists, fingers and ankles.
  3. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Thank you so much @Maya142 since you tried Rinvoq. We have been on it for a month with no success sigh at all and. We notice residue in his tools OF Rinvoq. How is your experience did you notice success or residue after a month? should we wait another month? Thank you I appreciate it.
  4. S

    Rinvoq

    We started Rinvoq for my son about two weeks ago for his crohn's. We've not seen improvements yet. I heard it takes about 3 month to work. Also l, we notice some time residue in his poops. Has any one tried Rinvoq? How long does it take to see Rinvoq work?
  5. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Hello, Does any one had experience with Stanford second opinion? Does it change diagnoses or treatment? I appreciate your reply? Thank you!
  6. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    What's the web address for Stanford? Does it require insurance? Could I pay out of bucket if does not accept my insurance? Thank you!
  7. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Arthritis located at his ankles, toes, knees and his calpro prior to Rinvoq was 800. His crohn's in large intestine He is on Rinvoq(30MG) for two weeks, I've not seen improvement yet. He is already on MTX. He was on Humira Bi-weekly then weekly but stopped working after 4 month. Got allergy from...
  8. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Thank you so much Maya142 we tried prednisone at starting of his symptoms for 6 month. with no effect at all. We know 16 months since his first diagnosed with SJIA. 'He just grow an inch or two. I can see his growth stopped. I'll talk to his GI about " typically kids have formula only or 90%...
  9. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Thank you so much my little penguin. Could you provide me with the web link address. Thank you!
  10. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Thank you we live in California. We got second opinion from UCLA. With same diagnosis. We tried ilaris then daily Anakinra with no effect.
  11. S

    My son was diagnosed SJIA at age 12 then Crohn's at age 13

    Hello, My son was diagnosed SJIA at age 12 then Crohn's at age 13. He is now 13. We tried Humira then Infliximab (has sever reaction from Infliximab at 3rd dose so we stopped it). Humira helped for 3 months only. Now we are on Rinvoq, MTX and actemra for two weeks now. His Arthritis is still...
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