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My apologies for not reporting back sooner. I have been in two moves and now finally back home in Colorado. I was on the Xeljans long term study which is over now. The good news I had been in total remission from February 2014 until 8 weeks after discontinuation in July 2015. Got my life back...

Wonderful. Other than we who have severe intestinal problems would ever use colonoscopy and nice in the same sentence. lol I have been a vegetarian for 40 years so I just adjust amount of "roughage" as things go up and down. I have been on what I believe to be non placebo for almost 6 weeks and...

I know you said you had a very "serious" doctor so I suppose you haven't added and vitamins or other supplements. Sometimes stool color will vary considerably depending on reaction to food. Dairy is a know culprit even if it gives you no other indications. Transit time. But an infection can be a...

Like you said we get to use drugs that we couldn't afford in most cases and get them sooner than available to others. Early Bird gets the worm but the second mouse gets the cheese. I'm hoping this is an Early Bird story and not a second mouse one. Also don't forget the big bucks you earn doing...

Well am on my last 8 weeks. Improved the last three weeks. Had several kidney stones over the past three months. It always makes it difficult to figure out what is hurting and why until it starts passing. Anyway things were good till last night when I had a bad bleed but stopped before it...

can't drink beer. carbonated drinks will often irritate. wine is acidy. Thank goodness hard liquor seems to sit fine. It actually settles things down. a drink not a bottle. True about the diversity I know more people that have crohns and diet is different. A few shared foods but after that...

Baby steps on diet change and keep notes. That's my only real advice. I have been a lacto-ovo vegetarian for 40 years so I don't get the burger craving but I did have to finally give up any deep fried Chinese restaurant food and I do get a craving for good onion rings. Such is life. Enjoy your...

I remember about ten years ago it was all low fiber, no dairy, no spicy, no night shades. No help at all. There really is no one diet its a long experiment. I kept a general diary and found a combination hoe sever and what I could eat that week. Turns out my emergency diet is cheese, eggs and...

It's frustrating but finding the right doctor is important. They have the tools. When I have rectal bleeding it is bright red but bleeding hemorrhoids internally is darker. I am sorry you have not been able to find answers. Stress makes the good bad and bad worse. Your reddish globules are...

When I have a flare I get blood and mucus. Globs. When I took ASACOL It got more purplish. What are you taking. When I get blood and mucus it never registers high. Just personal experience and by no means conclusive of anything.

Health continued to decline through January so I well may have been on placebo for 30 days. Switched to "new" batch on Feb 6th and was very sick by that time. I have been improving slowly through the month so maybe I have now been on the medication or full dose anyway. I go to the doctor next...

No one should go through this. Hell I shouldn't go through this but I may have other family that is or will suffer from this. I also feel it is very important to put yourself into the fight if you are in a place to do it. My kids a grown, I'm divorced and still have a sense of adventure. There...

TSO worked for me, It protected me from inflammation and It worked more quickly and completely than anything in the last 18 years. The question is why didn't it work broadly enough to generate a successful study. It is available in Europe and I will consider it when current studies are over...

TSO worked for me, It protected me from inflammation and It worked more quickly and completely than anything in the last 18 years. The question is why didn't it work broadly enough to generate a successful study. It is available in Europe and I will consider it when current studies are over...

Health continued to decline during January. Got new round of meds. (Tofacitinib or placebo). Health improving again. Wish I was back on TSO. Microbial transplants seem to be showing great promise. If I can find a study I will try to get in it. I promise to report back. I am not happy about a...

Even when it is part of the crohns "expression" certain foods can help trigger an outbreak. Such as chocolate as "writerfrommaine" indicated but also nuts, tomato, strawberry, wheat. etc. Depends on the individual so some detective work is in order. Keep your mouth moist and low acid to help...

Aphthous Stomatitis is common in crohns disease or any inflammatory disease . They are not actually canker sores but they hurt and break out on mucus membranes. Mine actually appeared 15 years before I was diagnosed with crohns or had crohns symptoms in my gut. Remember your digestive system...

As someone who has hired quite a few people I would always appreciate someone being upfront about something that was preplanned and will cause an absence. It may have some affect in the hiring if you are expected to travel or meet a deadline right out of the gate but if you are a good fit for...

Tofacitinib Starting into week three on long term (30 weeks) phase. Have had a few bad days. I also have eye involvement with crohns and it has returned to some degree as well. I do have a history of my crohns getting worse in January. Most of my hospitalizations have been in January. After...

I think we would all like to find that silver bullet that could allow us to lead lives without the company of our mutual friend. I also agree that crohns is more than an auto-immune disease. Unfortunately it may also be more than a single thing but rather symptoms of more than one "disease". The...