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Oh man... SO many obstacles since I wrote that last post... surgeries for stuck kidney stones, and the last one was in June of 2013, I was in the hospital for 9 days for what was supposed to be a 1 day shockwave surgery. They ended up finding a HUGE stone and breaking it up, and I had an...

My brother's friend ended up passing away the night after I wrote that. So terribly sad; he was only 21. The saddest part is that he saw a surgeon before keeping on the wholistic diet/juice fast and no medicine regimen, and the surgeon said "you WILL DIE if you don't have surgery on this...

Gra, do you have kidney stones and gallstones? To blast my kidney stones they do a procedure called Extracorporeal Shockwave Lithotripsy (ESWL), where they use a big machine that uses sound waves to break the stones up in your kidneys. Crazy, huh?

Hainman, what is your procedure? I will pray that it goes well and helps take away your symptoms. I wanted to ask everyone here for their prayers for my brother's friend Nathan who is fighting for his life right now in a hospital in Florida due to Crohn's complications. He flew there to try to...

Good luck on your entocort taper, blessedwithfour! I definitely want to ask for the 1mg's now to at least go down .5 mg's every other day at first. And guess what? I found out that the gentle iron pills don't hurt me! :dance: So I'm able to take a whole pill a day now and I'm really hope it'll...

Does anyone know which is better, Azathioprine or 6mp? My Dr. put me on Aza. a few years back and my levels were low, so he upped it. Then my levels were too high so he lowered it back down, but added Allopurinol along with it to up the therapeutic benefits without upping the bad parts...

Oh and I haven't tried slow release iron yet, I think I will try this special "chelated" iron first, I researched it and it's supposed to be a lot gentler on the tummy than the usual kind (ferrous sulfate) that they put in regular multivitamins. At this time though... I feel like it's more...

David, my grandparents live in the San Bernadino area of Southern California and I have checked out some drug trials that they're doing down there. I'm just not ready to commit to that sort of traveling unless I was doing a lot worse. I see two different GI's up here in NorCal and unfortunately...

I had some small bowel x-rays a few years ago that were pretty normal... can't have the capsule endoscopy because I have narrowing in my terminal ileum and it would probably get stuck. I'm supposed to have another small bowel series, but it wouldn't change the meds I'm on so I feel like there's...

Crabby, thanks for answering! The reply above was for David as I hadn't scrolled up and seen yours yet. Right now I am breaking the 5's in half, and I guess I would need to see my Dr. again to get the 1mg's prescribed. I'm so nervous though because of what I wrote to David above. I feel like my...

If I eat anything that doesn't agree with me that day, which sometimes is even food that I think is "safe", I immediately start cramping all over my abdomen and have to go to the bathroom with the big "D". It hurts so bad and feels like my gut is literally on fire. Luckily the meds have kept me...

After 1 1/2 years I am finally down to 2.5 mg of Pred, and I also take weekly Humira shots (yep, weekly!), 9 mg entocort, 50 mg Imuran and 100 mg Allopurinol to help the Imuran. I still can't eat any raw veggies, nuts, beans, broccoli, skins, seeds, whole grains, you know... all that healthy...

I was on only 15 mg of Pred for awhile and after a year and a half I am now down to just 2.5 mg, but I gained over 60 pounds, which has never happened before in my life, and I have barely enough energy to exercise because I'm so tired all the time! I also take 9mg entocort and get steroid...

I definitely know the crazy financial aspect of having Crohn's/IBD... it's crazy. I have good insurance, but it is expensive. And I also have Medicare now because I have SSDI even though I'm only 25. You would think that my premiums for my other insurance would go down with them knowing that...

I get my levels checked, but I hadn't done my lab work for a long time because a lot of the labs around my area don't know how to do the blood work for these tests as they have to be sent to a lab far away from where I live and refrigerated, etc. so I have to go to a certain lab and don't have a...

When I was a kid, I was definitely afraid of shots, so I feel for any of the younger ones who have to do these shots as they are more painful than other shots. Luckily I have gotten used to it and I just pinch my leg kind of hard to make sure there's a nice flat surface and then inject the...

I wish there was a pill that would work for him too... sometimes the answers just aren't easy to find with health, it's not fun! I hate that Prednisone is the only drug that keeps me out of the hospital when my crohn's is flaring... and I'm hoping that the potassium citrate will help me, I...

Ugh TimsMom, that is not fun... I can relate. I just had one of mys tones shock-waved and it worked out wonderfully! Finally, something that broke up a kidney stone and not too much pain! Has your son tried potassium citrate? I tried it in the beginning, but it irritated my gut too much so I had...

Ugh JJ so sorry... it seems like doctors are so incompetent when it comes to crohn's patients and kidney stones.. have they done a ct scan on you? Mine won't show up on normal x-rays or ultrasounds. I hope they find that's going on with you... I hate being in the hospital because they treat me...

My doctor better start checking regularly after I get these out! Unfortunately, they don't always show up on x-ray or ultrasound, but I've had too many ct scans so they don't like to do those... ugh... looks like I might just have to though.... thanks for replying! I've passed and/or had removed...