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Oh, and at 13.6 years old he's 4'6 and weighs 78 pounds.

Thanks for your input everyone! It is incredibly helpful to hear your stories. My son is 13.6 years old. He has not started puberty, but I will confirm again as I remember an earlier visit where I heard pre-puberty during our discussion with the growth docs. I think the real concern is with...

Thanks so much for your reply. I'm so relieved to have found this group! Yes, we're at CHOP with 2 docs, one in Endocrinology and one in GI. First of all, I'm so glad to hear nutrition has worked for your daughter. We're in a strange situation. My son's weight is not the problem, it's his...

Are any of your kids on Crohn's meds and Growth Hormone Therapy (GHT)? Our 13 year old son is newly diagnosed with moderate Crohn's and is currently on Apriso and Entocort. He has also been diagnosed as Growth Hormone deficient and on GHT, but the GHT is not working because he is not yet in...