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  1. Luciana

    Biologics or Surgery ?

    little penguin! What is "Tagging crohnsinct tacro" Do you have to stay in the hospital while you do Exclusive Enteral Nutrition)?? Or you do it as an outpatient or at home? And does it work for adults too? i'm 37. I feel best when i don't eat. Hugs back P.S doing research now on this site...
  2. Luciana

    Prednisone Can't sleep!

    :ywow: I'm on 100mg Prednisone IV in the hospital. Bed time is 9pm, it's 2am now and i'm sooooo tired but it's impossible to sleep. Meditated, read a book, netflixed, tried sleeping hypnosis on youtube. nothing is working. Any advice? What kind of sleeping pill could i ask for? without...
  3. Luciana

    Biologics or Surgery ?

    BRIEF HISTORY: Diagnosed at 14 years old I am 37 years old today. Medical history: Sulfasalazine, Mezalazine Enema, Predfoam, Predinsone, Azathioprine, Infliximab, Humira. No surgery. Last remission 2013-2017 (no medications in this time) Alternative medications: Curcuma tablets...
  4. Luciana

    Biologics or Surgery ?

    Hello Fellow Crohnies!!! I need some urgent advice from you guys if possible. I am currently hospitalised, receiving 100mg Prednisone IV to give me a few days to decide what to do next. About a month ago i ended up in the emergency room, throwing up, big cramps and bloody stools, with...
  5. Luciana

    Humira and Flare up

    Hello Fellow Crohnies! :-) i'm quite worried at the moment as i think i am starting a flare up. I've had a little bit of blood in my stools the past few days, a lot of gas, and running to the toilet a lot more than usual. I developed a cold soar on my lip too, and in general i'm very tired...
  6. Luciana

    Medically Induced Lupus from Remicade / Infliximab

    @wendy aka sakura santa Isn't that my post and story? https://www.crohnsforum.com/showthread.php?p=1008303#post1008303 i guess i don't mind, if you yourself is looking for advice, just seemed a bit weird to me that's all? Hope things have worked out?!
  7. Luciana

    Medically Induced Lupus from Remicade / Infliximab

    Hello everyone! Just a quick update. After my last post i ended up in the hospital again for a week. Because i woke up one day and i couldn't move at all. Had a lot of pain in my body, but it felt different from the Lupus, and i felt an inflammation in my joints and heavy head. like something...
  8. Luciana

    Medically Induced Lupus from Remicade / Infliximab

    Thank you all for your time!! :-) I have another question If you were give a choice, what would you take? Biologics or Immunosuppressants? And why? I have only heard of the biologics Remicade and Humira. But i see there seems to be many others on the market too?
  9. Luciana

    Medically Induced Lupus from Remicade / Infliximab

    37 year old Woman with Chrohn’s Colitis. Diagnosed at the age of 14. This post is about Infiximab / Remicade / Lupus / Azathioprine / Imuran / Humira / Oxycontin / Arcoxia I started infliximab / remicade in November 2017, after being hospitalised with a severe flare up of my crohns. I’ve had...
  10. Luciana

    Infliximab and Blood

    Hello Guerrero! Do you think that when I juice and it's completely smooth without any bits it's still too much fiber? I even filter it 2 times to make sure i get no bits however small in there? Thank you so much for your reply. Yes i will try not to worry too much. I know that usually the...
  11. Luciana

    Curcumin x DMSO x Vitamin C

    Crampygut! Yes i have found a doctor in Berlin, Germany, who makes these infusions in his clinic. He specialises in DMSO. And uses it in combination with other things. Like for example Curcumin or Vitamin C. This way he makes it very potent in hight doses. Usually he treats cancer patients with...
  12. Luciana

    Infliximab and Blood

    Hello ronroush7! Yes that's true. and it was bright. i've never had hemmorhoids, do they hurt?? I did have a stricture on my last colonoscopy in Novemember and Anal Fissure. But in this time i had a lot of pain because of them! Thanks for your input. Kind Regrds Luciana
  13. Luciana

    Infliximab and Blood

    Hello OleJ! Thank you so much for your reply. I will pay a visit to the doctors tomorrow and monitor the next few days how my stools are. I feel no other symptoms otherwise. Before i started the Infliximab in November, i was flaring pretty bad and the whole colon had inflammation, which was not...
  14. Luciana

    Curcumin x DMSO x Vitamin C

    Happy Sunday to you all :-) Has anyone had Curcumin x DMSO infusion treatment for Crohn's? Or Vitamin C x DMSO Infusion Treatment? What are your thoughts on this? I have recently started Infliximab. But i don't want to stay on it for too long if possible. And i'm looking for alternative ways...
  15. Luciana

    Infliximab and Blood

    Hello Everyone. I am new to the forum, this is my first post, and i need your advice :sign0085: I recently started Infliximab / Remicade for the first time, because i could not taper down my Prednisone without flaring up. I have been on prednisone for half a year now. Thankfully the Infliximab...
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