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"Ferrous furamate" anyone have anything on that that i should worry about? Aparently the wee fellas iron levels are low and this is the solution to this.

Will do dusty!;-)

Wee update. son has started getting a rash on his hands. Doctor has put this down to his aza and says he is poss photo-sensitive. Now prescribed hydrocortison cream snd a 50+ factor suncream. We have been in contact with IBD nurse and she says doc looks as tho he has hamdle on it! Anyone heard...

My son's on 150mg aza per day and has also came out in a rash on his hands. Doc has attributed it to photosensitivity caused by the aza. His remedy is 50+ factor suncream but not tried his theory out yet. The IBD nurse thinks doc has called it right.

Bloods coming back looking ok. 150mg aza for the forseeable so fingers crossed!:-P I know i keep saying it but you guys have been the voice of reason in an otherwise CRAZY world! ;-);-)

Been corrected by my wife. It's not 50mg 3 times a day it's 3x50mg all at once so you were right about that dusty. ;-):-P

Thx for clearing that up dusty. For sec there i was worried. I have a work-mate who's son has had crohns for good few years but his wife is the one who deals with all the hosp and stuff. When i mentioned aza the first thing he did was call her on his mobile then hand it to me!:-) I now have my...

Not sure of weight dusty. Average for a 14 yr old i suppose, 10-11st'ish! Why an odd regime?

Small bowel dusty. Picked up his tabs today. 75mg for 7 days then one 50mg tab 3 times daily. Trying to get his head round it right now.:-(

Don't think he could do another round of modulen and aftr the last time i don't think i could either!:-P:-) Thx again guys for all the help. This site has been a true godsend to me and mine!;-)

Hosp called ystdy and told us that wee-fellas inflamation markers were still too high from results of last bloods taken. Recomend him going on Azarthioprine. Will leave us for couple days to think it over. Is this a good thing or bad thing? Apparently the Ibd nurse told my wife a flare-up looked...

first follow-uo apmnt just been done today. Doc were very pleased with wee-fellas progress and have gave us next apmnt for 6 mnts from now!:-) Also gave us cautionary warning that his system just gettn back to normal so attentiion still needed. like we didn't know that eh!!:-P;-):-) We were...

Sorry not been on for while! Run up to festive season was hectic both @ wrk and at home!:-) Andy doing great. Nothing nrw since last post but thats a positive isn't it? Hope all is good with the rest of you. MERRY XMAS AND HAVE A GREAT NEWYEAR.

Modulen no-more!:-) My son kept up with minimum dose of modulen for full month after he had to and i am so proud of him for doing so with no coaxing from me or his mum!;-):-) So far so good with regard to flare-ups! ( Prob just jinxed it by posting it!:-(:-P but thought would update the thread)

When my son was put on modulen my wife and my sister-in-law started a fund in a tin. Tonight we all went to my sons favourite restaraunt and had a slap-up meal. The look on my sons face through-out the meal was worth it. He was laghing and joking with me and my bro-in-law, it was good to see.:-);-)

Glad you got some answers bubbly. My sons crohbs is RHS but fortunately SO FAR he has had no issues after the modulen. You will always be the first to see when your son needs help. As my wife keeps telling me " A mother knows when something isnt right with her child" ;-):-) Hope things settle...

Hi bubbly. sorry to hear your weefella havin such a bad time with the modulen. You know your son better than anyone so sounds like you are doing the best thing for him. I know when my son was having issues we used to phone and leave msg with his dietician/ ibd nurse specialist who would then...

One wk on from modulen faze out/ reintroduction of food. So far so good!;-) He had mc d ystdy and in his words " MAGIC". Down to 2x200ml each day for as long as he feels he is able to do it.

Thx dodie74!;-) here's hoping everythn goes this well gor both our kids from here on in!;-) scrap that last line. change it to for All Our Kids from here on!:-)

Update.had dexa scan ystdy and then had appntmnt @ clinic. startn to phase out the modulen from nxt saturday but will be while b4 modulen completely finished tho. re-introduction of foods will commence @ same time. Hosp very pleased with how my son has progressed and we go back in 3 mnth when it...