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  1. Z

    Modulen

    Thx dusty.;-) Googled it and all i saw was osteoperosis and then i thot why not ask guys who are in my sons position or have been! we go to yorkhill on 3rd october so will update afyer.
  2. Z

    Modulen

    Anyone give me an idea on why my son's been asked to go for DEXA scan?
  3. Z

    Modulen

    I AM SO PROUD OF MY SON! My son was out with friends lastnight and due to the modulen diet he had to take one dose with him!:-( I have just literally finished having a conversation with about his nite and turns out they all went to McD's and whilst his friends were all munching on stuff he sat...
  4. Z

    Modulen

    Word back from hosp re: bottled water. you can use it but it doesn't mix as well as cooled boiled water with the modulen!o_Oi Trip away may be off anyway as weefella havn doubts about enjoying himself but not being able to eat!:-(:-(
  5. Z

    Modulen

    We are bak then start of october which will be end of the 8wk modulen. Then maybe it will be less frquent.Touch wood. thx again for your good thots!;-)
  6. Z

    Modulen

    Thx Cinny will run that one by the hosp if bottled water(normal) a no-go.;-)
  7. Z

    Modulen

    Dodie74 thx for your advice and kind words. I think the team @ yorkhill are top quality @ what they do and seem to understand the "BIG WEANS" like me too!!:-P:-):-)
  8. Z

    Modulen

    Put that option to my son too and his reaction was the same!:-) Sent an e-mail to the IBD nurse/dietician to see if poss to use bottled water rather than having to use boiled water cooled. Will make going away easier as can make the doses up as we need them.
  9. Z

    Start of treatment

    Hi sascot. sorry your wee fella's had such a hard time of it! They often amaze you with how resilient they are. Hoping you and your family sail thru the nxt few weeks.
  10. Z

    Modulen

    Thx guys. aftr listn to the answer machine again have worked out that it is Azathioprine so you guys called it right!:-P;-)
  11. Z

    Modulen

    Question? Any of you guys heard of a drug called AZITHROMYCIN being used as a protocol for crohns? reason i ask is yorkhill hosp phoned today saying the docs were cinsidering this for Andy ( my son) As usual any pointers most gratefully appreciated. ;-)
  12. Z

    Modulen

    update IBD nurse/dietician very happy with my son's progress! :) he has put on 14 lb in the 4 wks he has been on modulen, still no stomache pains or sickness!! :) :) If weight continues to gain we've to phone and they may reduce the amount he has to take. Given the ok re:couple of days away! :)
  13. Z

    Modulen

    :ybiggrin: My wife had all our friends and family buying any bottles they came across! As of lastnight we have enough to get the wee-fella thru his 8 wks!! :ybiggrin:
  14. Z

    Modulen

    Seems to like Crusha limited edition vanilla icecream mix Dexky.
  15. Z

    Modulen

    thx for your support Sascot. As you may have noticed already there are lots and lots of people just like us populating this site so help/support is only a click away! ;) update My son proven to me, ONCE AGAIN, that he has my stubborn streak and his mothers good sensible head by sticking to the...
  16. Z

    Modulen

    ONE WHOLE WK without sickness, still getn pains but coping! :-) Big thx to toneloc for pm. Really gave me a boost. Barium meal tomoz so fingrs crossd!;-)
  17. Z

    Modulen

    Thx guys. wee update. 4days without sickness. 1st time since january! :) keep seeing references to nesquik so plan on askn ibd spec if this can be used as an alternative to crusha.
  18. Z

    Modulen

    my son seems to be gettin a handle on this thing now.(touch wood :) ) Hoping it was just the newness/strangeness of only being able to have modulen that freaked him out. Will keep you all in the loop re: future developments. thx for the shoulder to cry on
  19. Z

    Modulen

    Thx for all your kind thoughts/wishes. Will be talking to the IBD specialist and the dietician l8r to.day. will be putn fwd the alternatives to them. Tesscorm just reminded me that i had left out my son's age in my post. He's 13 yrs old.
  20. Z

    Modulen

    thx much. tried him again today with modulen with added crusha vanilla ice-cream flavour and he got it down with no "blowback" so maybe a bit of light at the end of the tunnel. If he is unable to do this himself the next stage may be a gastric nasal tube but as he is about to return to school...
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