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She actually was started at 20 mg/day. She is only 6, and very tiny. Her weight at the time was 38 lbs. Not sure if that helps, but maybe you can figure it out based on body weight....

My daughter was given prednisone....it worked wonders for her physically, but it probably took about two weeks to truly see a difference in how she was feeling. She didn't get many of the side effects that they tell you about, but she had really wicked mood swings...just be warned! Feel...

Thanks! That's what I thought too, just needed some reassurance! The school knows (I had to tell them because she had missed so much school, but they've been great), family knows and she has 3 good friends and their parents know, but I've told them to just explain it as tummy troubles. You just...

Hi again all! Quick question....Sadie was at a birthday party today, and of course, I had a parent ask me about how Sadie was feeling. It's a perfectly normal, honest question. I wasn't really sure how to answer!! Do you divulge the diagnosis? Do you just try to tell a few parents of the...

YAY!!! Thank you all so, so much for your advice!! Our bioadvance coordinator was able to get the insurance coverage, so we are starting remicade Tuesday!!!!! I felt like I won the lottery when I got the call (though I've never actually won the lottery, so not sure ;)) It is a terrible thing...

Thanks everyone for all the kind words of support! I have a quick update....Sadie was finally approved for the Remicade, so we're starting tomorrow!! Yay! I realize that every drug has good and bad, but, we're hopeful that this will finally get/keep her in remission. I have set up an...

Thanks for all the advice guys! I actually have spoken with the Remicade rep, Sarah, who has started the appeal process for us. I'm just very, very impatient and they say we won't get an answer to the appeal for 5-7 days. We just sent in the paperwork on Monday so I'm getting a bit ahead of...

Thanks everyone!! I think I will look into finding her someone to talk to....I don't think I'm the best one as my patience isn't my best quality! :/ I'm so glad that I found this forum....I do find that it's more me that needs the support! My husband and I deal with this very differently, so...

Hi there! As I mentioned before, my daughter has been newly diagnosed with Crohn's just 2 weeks ago. We've started the prednisone, the ciprofloxacin, and the metronidazole. We're waiting to start on the Remicade, but the insurance company (Great West Life) rejected our initial claim saying...

Hi there! My name is Lori, and my daughter, Sadie (6) was just diagnosed with Crohn's about 2 weeks ago. The diagnosis was almost a relief, as at least it wasn't something much, much worse, which as a parent you fear the most. We've started the prednisone, cipro and metro for now and we're...