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  1. lindsaydij

    New Crohnie needing help! Have you ever struggled to get a flare-up under control with prednisone?

    Hi Ron, Thanks for being here. They didn't say too much while I was at the hospital, only that they were not understanding why my symptoms came back and that every blood and urine sample was looking totally normal. They tried to get a gastro to attend me but he's (also) out of town this week. I...
  2. lindsaydij

    New Crohnie needing help! Have you ever struggled to get a flare-up under control with prednisone?

    Hi everyone, Thank you for your kind words and your help. Unfortunately my doctor is away until May 2 and I'm still stuck trying to figure things on my own. I was bumped up to 75 mg of prednisone a day, but am STILL having pain and was in the hospital over the last few days. I'm feeling so...
  3. lindsaydij

    New Crohnie needing help! Have you ever struggled to get a flare-up under control with prednisone?

    Hi lovely Crohn's community, After a VERY long 5-year battle, I was finally diagnosed with small bowel Crohn's in January of this year. Doctors also just discovered Colitis in my right colon in my most recent colonoscopy and I began on IV prednisone immediately in hospital (on Mar 15) for both...
  4. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Hi saucytart (love the name), That's so coincidental - I was actually recommended Dr. Brian Bressler by a radiologist who viewed my last ultrasound images. He said that Dr. Bressler is the best of the best in the Van area and I'm definitely going to ask my family doctor to refer me to him at my...
  5. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Thank you so much for your reply! This is a very insightful response and I will definitely approach the idea of going on a steroid with my doctor at my next appointment. Very smart idea considering getting properly tested can honestly take months/years to wait around for. And very good point...
  6. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Oh no! How very frustrating - I've been there many times and experienced the sheer disappointment and helplessness of hearing that nothing's wrong. (Although YOU know something is definitely wrong.) I hope you get some scopes and some answers soon as well.
  7. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Thank you for your support, Ron. It is much appreciated, especially after feeling defeated for so long. I'll keep everyone updated if I get any kind of answers soon. Thanks again :)
  8. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    I agree - I think I really need to see a new gastroenterologist who knows much more about Crohn's than my current one does. (Mine seems to be REALLY specialized in the liver and hepatitis.) Thanks for letting me know about the PillCam - that really makes me want to push even MORE to have one...
  9. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Hi Catherine, It's great to hear from you. Since the weight loss I have gone in for blood work once (a lot of tests for my liver function, if I remember correctly), did another h.pylori breath test, and had an abdominal ultrasound. All of those things came back normally. Yesterday at my gastro...
  10. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Oh wow! You've been through such an ordeal and how terrifying to pass that much blood at once. My next course of action is to seek help in the States if my Canadian doctors continue to ignore my desperate pleas for further tests or scopes. I'll keep the names of UW and Virginia Mason in mind if...
  11. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Thank you so much for your insights and feedback - it definitely helps! I've had my gallbladder checked numerous times via ultrasound and once during a CT, but never anything further such as a HIDA scan. Perhaps this is something I should push for to know if things are working well and rule out...
  12. lindsaydij

    How were you diagnosed with Crohn's? Looking for urgent help.

    Hi everyone. I’m a 24-year old female from Vancouver who has been plagued with digestive issues and pains since I was 19. For the past 4.5 years, I swing from having a few weeks of being okay (intermittent pain) to having many weeks/months of extreme pain (missing work, unable to leave bed). The...
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