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Thanks guys. I will definitely let you know once we have a resolution. Thankfully Sophie is so well right now so we have time to figure it all out. Thanks again. Take care x

So we received the biopsy results and they rule out IBD. The plan from here on is to assume allergy or infection. As much as we are over the moon and feel very lucky. We have no real answer. Anyhow I just wanted to conclude this and thank you all for your advice and support. Very best of luck...

Thanks so much for taking the time to get back to me. I really appreciate it. We get the biopsy results on Wednesday so will know more then what were dealing with. Thanks again!

Not 'tense' sorry I meant 'these'.

Hey guys so my daughter finally had her scopes a couple of days ago. The doctor came out and said that she had found a small area of irregularity in the small bowel and that this could be inflammation, allergy or even just normal for my daughter. She also said she saw some minor changes. She...

Will do! Thanks Dusty! X

Thank you so much Dusty! They were the tests and they both came back negative and the specialist has said that this has ruled out IBD by around 80% and along with the recent low calprotectin numbers he is feeling positive. He said we must proceed with the endoscopy an colonoscopy though to be...

Hi Dancemom thanks for your reply. I thought I read it can only be tested through scopes or breath test? Is there another way? Thanks again!

Wow Catherine you really know your stuff. Thank you so much for taking the time to get back to me. I can't tell you how much I appreciate it. She definitely hasn't been tested for SIBO and haven't even heard it mentioned by the docs. I will be sure to ask. Celiac has been bought up a few times...

Hi Catherine thanks so much for your reply. I have never noticed anything wrong on her bottom and two doctors have done a rectal Exam. Her Ferritin was tested last time back in August and it was fine at 23.21 (6-233). Her B12 was actually high but they said it could be because she didn't fast...

Hi thanks so much for the response a she had Iga and igg tested in august and they were both fine. Iga was 0.91 and top of normal is 1. I can't read exactly what the doctor has written on the claim form for the new blood tests but it looks like ANCA and ASIA? Apparently they are specific tests...

Crp

Hopefully results are attached..

Ok so the hospital have just emailed her recent blood test results and a few things are off. Am I able to attach them here or is it best to list them?

Thanks very much for your response. Both her B12 and Vitamin d were fine back in august. Her zinc is 58 so right at the bottom of normal but still normal. It's so strange. She has had a CBC many times over the past six months as they always think she has an infection when her fever goes up to...

It's bright red Catherine

Hi guys! So after a couple of month of Sophie being on great form after her iv antibiotics we have recently had another bout of blood in stool, huge fever, stomach pain and mouth ulcers. After her original qualitative positive calprotectin the last three have been absolutely fine with the...

So apparently there are two different kinds of fecal calprotectin tests. One is qualitative which is what we had done. This will only state negative, borderline or positive. The other is called quantitative whereby you are provided a value. Thought I would put this on here incase anyone else is...

I will definitely be asking for it to be repeated and that a value is provided! Thanks again!

That's great thank you so much Maree. The whole fecal Calprotectin postive thing seems very strange. Would be a nice thought to think they had done something incorrectly and she doesn't actually have elevated calprotectin! Thanks again!