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Crohn's Disease Forum

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  1. S

    One week out from 3rd Infusion. Panicking about lack of results.

    Hey, thanks for the reply. How are you now? Are you free of symptoms? For how long?
  2. S

    Realistically, what can I expect out of life; post surgery.

    Yeah I suppose it can't be AS bad as UC. Inflammation after all hurts. Anyway my friend, I'm off to bed. Thanks for the help. I'll keep you posted!
  3. S

    Realistically, what can I expect out of life; post surgery.

    But what about pouchitis? Isn't that basically just like getting UC again but with the pouch? I've heard they can't help it and a lot of people get it chronically. That's my only real fear to be honest. I've read a few stories of people still going to the bathroom 10 + times per day with...
  4. S

    Realistically, what can I expect out of life; post surgery.

    Sounds good (relatively). How have you found your weight to be since you've had the bag. Have you been able to get back up to your natural weight or are you still stuck being skinny? Since I've been diagnosed I haven't been able to get past 140 pounds when my natural weight is about 155.
  5. S

    Realistically, what can I expect out of life; post surgery.

    I appreciate your answers dude. Sounds like you've had a rough time of it. I'm sure not even having to deal with the bathroom at all after 20 years of UC must be better than heaven! I'll definitely check out the link you gave me. How long was the the whole surgical process for you? I've read...
  6. S

    Realistically, what can I expect out of life; post surgery.

    I have thought about fecal transplants but as far as I know I'll have to go to England to do it (I live in Ireland) and its 4000 euro to do it. I'm not sure I can afford it and from all the things I've read I've yet to see anybody with Ulcerative Colitis cured by it. If you've heard otherwise...
  7. S

    Realistically, what can I expect out of life; post surgery.

    How come you've decided to stick with the bag?
  8. S

    Realistically, what can I expect out of life; post surgery.

    Honestly I cant go through another 2 months of waiting around. If I don't see some major benefits in the next three weeks I'm moving on to something else. I know surgery is going to be hell for awhile but I need some kind of release.
  9. S

    Realistically, what can I expect out of life; post surgery.

    So I spoke with my doctors today. We are going to wait until next week to see if my 3rd infusion works before jumping into surgery, however, we both agreed that it is the next step. Unfortunately I'm getting worse daily now so things aren't looking good. The surgeon is due to contact me some...
  10. S

    Realistically, what can I expect out of life; post surgery.

    Hi sorry I left out some important info. It's edited into the top now. I was diagnosed 18 months ago. I've been on asacolon before the remicade. I'm on imuran and remicade at the moment, as well as the asacolon and steroids tapering. I've been in a constant flare up now for about 7-8 months so...
  11. S

    Realistically, what can I expect out of life; post surgery.

    Hi sorry about that. I have ulcerative colitis. Left sigmoud as far as I know.
  12. S

    Realistically, what can I expect out of life; post surgery.

    Hey everyone, I'm seriously considering getting surgery at this point. Remicade has yet to work for me, although I'm still due to get my third treatment next week so fingers crossed that kicks things into gear. EDIT: I have ulcerative colitis. Just the lower, left side. Diagnosed 18 months ago...
  13. S

    One week out from 3rd Infusion. Panicking about lack of results.

    I won't lose faith then! Thanks for the support guys, you'll be hearing more from me and I'll let you all know how I got on. Good luck to you all.
  14. S

    One week out from 3rd Infusion. Panicking about lack of results.

    Hey everyone, I've been on Remicade now for about 7 weeks. Initial symptoms were pure diarrhea with blood at least 4 times per day. Since then I've had my second infusion (three weeks ago to the day) and although I sometimes feel like I'm seeing improvements I've yet to see any clear or major...
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