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Thanks Mandy. The things is I'm not 100% sire it is a fistula. That's said there is obviously something going on. They refer to it as a sinus but some doctors say if it was a sinus it would have healed by now. what problems did your sinus cause - did it weep, did yu have to wear dressings...

Yes thank you - I have replied now 🙂

Hi Kat 123 - sorry I got your Crohn's it wrong! I had Crohn's colitis and had an ileostomy years ago, my bowel perforated during a hysterectomy. The fistula goes from my small bowwl to my skin - it didn't show on ct so is probably quite small but the hole on my abdo leaks and I have to wear...

Hi Kat 123 Thanks for update. I can't be of much help to you as my fistula is not the same as yours. Mine is bowel to skin and cams through my abdo wall. I how this works for you it is so difficult to deal with - how did it start with you? Am I right in thinking you don't have Crohn's? It's...

But it's not an easy decision - I'm from UK too by the way. I had hysterectomy in January and my bowel perforated which has left me with many problems including fistula. I agonised over the decision as to whether to have the hysterectomy and it went wrong but that's how it is. Your consultant...

Hi Kat, can't help you directly with your question sorry. I have a fistula but different type and I too hate it. I too also worry that surgery would make things worse and stop me doing the things that are important to me. Hope someone comes along soon to answer your question x

Hi - I too have a non Crohn's fistula - mine was as the result of surgery when my bowel ruptured. Long story. I have had mine 8 months now and no sign of healing - mine is in my abdomen. I suppose it depends what caused the fistula as some do heal spontaneously. The seton is just put in to...

Hi Luke, I too am from UK. I can't answer your questions but can relate to the depression. I too feel like you and feel a sadness deep inside. I am on Prozac also which helps a little but at the moment seems to be doing very little. I had ilesotomy 30 years ago and in January had another op...

Hi all - I had crowns inmy large bowel and had an ileo stop my 30 years ago. I've been pretty good bowel wise since. In January of this year I had a hysterectomy and part of the bowel split, I was in hospital for 3 months. As a result of the surgery I have now developed a vsginal fistula and...

Oh goodness didn't realise you were having an Ileostomy . How are you feeling ( stupid question ). Well as I said I have had my ileo 30 yrs and it's been fine honestly no problems. They are hoping my fistula will heal on it's own but I'm not confident. Well hopefully now things will start to...

Hi Diver Jude Sorry for delay in reply, forgot my log in details again. It is a horrible condition although you sound to be suffering more than me. My fistula was as a result of a perforated bowel following hysterectomy ( although I already had a stoma for bowel disease). It is hard to come...

Hello - my first post so please be kind :) I'm 55 and have a Ileostomy for bowel disease - Crohn's colitis - I had this 30 years ago and it's been ok. I ended a hysterectomy in January this year and my bowel perforated . I was in hospital for months on TPN. I am now home and eating fairly...