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Me again. Not much more news except that the endocrinologist called me to discuss. To update, daughter is 12yo next month. Decline in growth curve, height and weight over past 3 years. However, I'd say there's been something all along. It is only now that whatever this is is amounting to the...

First, thank you again. This is such a wonderful resource and I appreciate your willingness to share your experiences. I'm really glad that you all mentioned the appetite issue. First, no sign of puberty yet, unlike her younger sister. She's still wearing the same sneakers I bought 2 years...

Hi all, I'm not quite sure what to do next, if anything. I posted a few months back and received some very helpful suggestions. My daughter is almost 12 and undiagnosed. Her growth curve has declined over the past 3 years (60% height to the 23% and 29% weight to 3%.) The rest of her family...

Thank you for the most recent comments. I was out of pocket for a couple of days and so appreciate all of your thoughts and good wishes. To answer a couple of questions: They've never been able to "catch" stone. She's had five episodes in 4 years. Always presents the same. A day of grumbly...

Thank you for all of the advice. We've done the pediasure, nestle good start, boost etc for quite a while now. I keep trying to switch it up because she gets tired of the taste. I've tried hiding the scandishakes in smoothies and I've had the best luck with the benecalorie liquid that adds...

All such helpful info. Didn't know to avoid the ibuprofen. No idea on the inflammatory markers. She has been anemic occasionally over the years. No consistent aches and pains but she needs a lot of sleep and gets run down pretty easily. Thanks so much!

Thanks for all of the ideas. The poor appetite has been since birth. She had reflux and beyond that vomited so often that I would layer her crib sheets so that when she threw up in the middle of the night I could just pull one off leaving another below it. That resolved itself by the time she...

Thanks, I'm sure that's true. I know this is a Crohn's forum and I don't even know if she has CD. But based on all of your collective testing can anyone think of what else it could be? The growth pattern supposedly suggests GI rather than endocrine. Is there anything else obvious that causes...

Thanks very much. Celiac blood work was negative. I will definitely ask about the MRE and pill cam. Thankfully she isn't outwardly symptomatic in a way that is causing her distress. And hopefully it won't come to that. Though the sudden unexplained kidney stones do pop up now and then...

Hi all. I'm new to this and am not sure that I'm even posting in the right place. I'd appreciate some advice for what I should be asking (or even just how to be patient though this process.) My daughter is 11.5 and I've been concerned that she hasn't been growing for quite a while now. She has...

Will do, thanks!

Hi all. I'm new to this and am not sure that I'm even posting in the right place. I'd appreciate some advice for what I should be asking (or even just how to be patient though this process.) My daughter is 11.5 and I've been concerned that she hasn't been growing for quite a while now. She...