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I also had Ileostomy for 2 years to heal absess/fistula. Fistula closed. I had a reversal and fistula came back -my rectal inflammation came back.

I was not able to travel to Mayo for this trial - active flair on prednizone at the time. Humira worked great for 4 years, then my body adapted to it. Nothing else worked to heal/close my fistula. I am living with a seton now for 5 years. I am waiting for start of a new trial with direct...

I am sorry to her it was not a successful for you. Is the new direct injection of donor stem cells only for RVF? I am interested in it for rectal fistula. Best of luck!

Check this out: https://www.mayo.edu/research/clinical-trials/cls-20341682 Stem Cell Coated Fistula Plug in Patients With Crohn's RVF

This approach has a very low success rate. My experience was bad. Plug created terrible infection and abscess that needed to be drained. I had to be hospitalized on very strong IV antibiotics that killed all my good gut bacteria and got C diff. That was 9 years ego and for the first year C diff...

Video on new treatment of fistula at Mayo clinic: http://medprofvideos.mayoclinic.org/videos/another-promising-application-for-stem-cells-crohn-s-complications

I had the LIFT procedure (close the current internal opening and create a new opening outside all the muscle) - 30 min under anesthesia - it did not work for me -fistula re opened at the old spot. Check this video on new treatment research at Mayo clinic...

My seton is in place now to prevent fistula re infection - outside opening closing while inside is not and that creates infection/abscess. I do not have pain or draining any more, just small discharge( I tape a small cotton gauze over) if I have a runny bowel movements. I run, swim and ride...

Hope you find answers soon! I have had many and still have a fistula with a seton today - that's almost 5 years...The only time I had bleeding is right after abscess draining and one day after seton placement. As far as your wait time for a procedure/appointment - that is crazy! That is the...

I think what the doc means is the outer mucosal layer heals first, then deeper layers. It makes sense to me: UC is top layer inflammation vs Crohn's deep layer inflammation with complications such as fistulas.

I have started on the Filgotinib clinical trial 5 weeks ego. My urgency went down a little, but my frequency down dramatically! Down to one or two BM per day! No improvements with fistula so far.

I agree with D.Bergy - chiropractic helped me with sciatica issues years ego (that certainly was appreciated - less pain is always welcome) but did not improved my bloody diaria, cramps, urgency and 20 BM per day.

Hello. I have started on the Filgotinib clinical trial 5 weeks ego. My urgency went down a little, but my frequency down dramatically! Down to one or two BM per day! No improvements with fistula so far.

Hi. Yes, I have used a single dose before. I also had a 7 day prednisone protocol but with 20 mg starting dose.

Efficacy and Safety of Filgotinib in the Treatment of Perianal Fistulizing Crohn's Disease. ClinicalTrials.gov Identifier: NCT03077412 I will be starting testing to see if I can participate in this study on Nov 1st. Its in a pill form - no shots or infusion. Will be reporting on my progress, or...

To JennyT I had ileostomy reversal. My wound took about 4 months to stop draining. I had to go on antibiotics due to developing infection in the wound. It finally closed at about 5 months.

It's possible that you have an abscess. I had many of them. May have to go on antibiotics. Check out posts in Fistulas, Fissures and Abscesses sub group: https://www.crohnsforum.com/forumdisplay.php?f=76

I was not sure that I could have a reversal - just that Ileostomy has a better chance for reversal. also, I did not have any sections of GI track removed, just colon bypass to heal rectal area.

Go to the ER if you feel pain, don't suffer. As far as " colon rupturing " - I don't think you would be on the computer typing this - that pain is not bearable. Good luck 2 u!

Here is my post from few years back, but I think it stills takes the same process. I first went on STD (short term disability)after I had a fistula surgery, it would not heal for month’s. I couldn’t sit due to the pain, I leaked post BM and was very depressed. Mind you, I lived for years with...