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Thanks for the vert important reminder debbe261. We always do have to balance the treatment with the potential risks and cancer is certainly the thing that chronic inflammation can lead to anywhere in our body. I am so sorry you had to go through all of that. I am so glad you were diagnosed...

My son's GI doc was hesitant to prescribe it. He said there were just as many studies showing that it does not work and the studies have too few people. I just read this thread and think it is worth a try before trying heavier meds once this abscess finally clears up. He has small bowel...

Debbie261, Do you have an abscess too? My son's penrose drain was used for his abscess and not the fistula. Usually setons are used for fistulas. The meds tried for fistulas are antibiotics, immunomodulators and biologics like remicade. It seems like remicade is generally the most effective...

My son had his abscess drained 4 times...first it was small and just drained. Then a seton was put in but the abscess remained, then they packed it and removed it slowly for 4 days and again it closed on the outside. Last, they put in a penrose drain. This seems to finally be working!!! It...

How accurate is an MRI and exam under anaesthesia at diagnosing a fistula. My son had one and they said it is gone but the reason his abscess remains is that it closes too fast on the outside. He now has a penrose drain that is keeping it open and his pain is finally low. I am just curious...

When we see his GI doctor, I plan to see if the Entocort has brought his Crohn's under control. Then we will weight the pros and cons of treatment next. The cancer risk is much worse for teenage and young men than any other group for a lot of the meds. If he was a girl, I would be much less...

My son did re-abscess again although the surgeon said his fistula looks healed. He is just healing too fast on the outside of the abscess and not allowing that to heal from the inside out. They put in a penrose drain on Friday and he is in very little pain...much less than all of the other...

They do know he has Crohns and he is on a 504 plan. Some teachers have been great and others less responsive but we are hoping to carve out a plan with each to determine the critical work he needs and when he can take catch up tests and get back up to speed. Incompletes may be an option if...

He re-abscessed after 3rd surgery. Thankfully it started to drain (in a major way) last night. We go back to the surgeon today and make seek a 2nd opinion from an adult colorectal surgeon. I just hope he is able to finish his classes with only 4 weeks left of school. He I an excellent student...

My son had TI disease to start with and normal blood work. The only marker we could use aside from the scope and video capsule was FC. It was 700 when he had his first flare. My GI only uses it as a personal comparison to track over time. So far, it does appear to be a good indicator of what...

I pray this one works. My son had a drainage Feb 1st, drainage and seton placement April 2nd and was admitted yesterday for MRI, blood work and is in surgery right now again for drainage, possible re-direct of seton, cultures and sigmoidoscopy. He had all the prep and could go at all. His...

I have read hat a chronic fistula can increase your long term risk for cancer in that area so you may want to ask your doctor about this. I do know that they are often left alone if they don't cause pain and are not interfering with other organs. I also know when they are surgically repaired...

Thanks everyone! One think to check off my list of worries right now!

Hi Everyone, We can see the pentasa granules in my son's poop! I broke one open just to make sure and it is definitely the inside of the pentasa tablet. He said that has been there for a long time. Does this mean he is not getting the medicine? No wonder he flared if that is the case...

Thanks for those tips! He won't wear the tighter boxer briefs I bought him. He likes them loose but I am still working on him for lacrosse but that seems to be the least of our troubles at this point. He had the seton surgery on Tuesday morning and he seems to be deteriorating each day. His...

GEC - Have you looked at the treatment link for LDN? It sounds like there have been some great results with perianal disease as well as other Crohn's healing. It is also an inexpensive drug with a low side effect profile. Hope you get better soon.

enumeras - Has LDN worked to keep perianal disease away? Have you had it since 2008? Just curious if people have successful treatment outcomes after abscess and fistulas and if this is an option for maintenance with perianal disease. I would prefer to have my 15 year old son on this than...

Hi Everyone, I am curious how many of your kiddos have or had peri-anal disease and if treatment was successful. My son who will be 15 next week just had abscess drainage and seton placement 2 day ago. Wondering how other kids dealt with the seton and what was done to prevent this from...

My son only has ileal disease and developed at abscess and fistula 15 months after diagnosis. They just saw through a video capsule that he is in a flare of his ileum but I want to inquire about another colonoscopy to see if he has colonic or rectal disease since he now has peri-anal disease...

I think I am confusing rectal disease with peri-anal. I guess any abscess or fistula in the presence of Crohn's is likely peri-anal. It is just confusing. Thanks for helping to clarify. Do you notice less mouth ulcers and peri-anal issues when your ileum is under control? Are you on remicade?