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Thank you for the information and the link. If it's Inflammatory arthritis, how do they treat it? The rheumatologist I saw mentioned low dose naltrexone, but I don't want to take NSAIDs for obvious reasons. He mentioned something else for the pain.. gabapentin. I have chronic major...

It's definitely lichen planus. It was diagnosed separately by 2 different docs, years apart. Tons of biopsies. The first diagnosis of LP was at least 16 years ago. And it stumped them for a while. The GI actually thought it was EoE until the biopsies came back. I've seen a...

I have not tried formula only. That's one of the questions I asked about in my message to the doc. I have fibromyalgia, so joint pain, yes. But different pain? No, nothing significantly new or different. I'm exhausted, as usual. I bounce between constipation and diarrhea. I've been...

I have not had a test for SIBO. I was diagnosed with esophageal lichen planus 10 years ago because I was choking on everything. I had an EGD to dilate the strictures in my esophagus, it required a lot of follow up and for a while I was having endoscopy dilation every few weeks or months. I...

Your daughter sounds awesome 😆 Thanks for the website! There is a lot of info on the web, but so much of it each person's trial and error. So your daughter got the meds, took the meds... and it didn't help. Ugh! My doc ran labs and ordered the MRE to check for inflammation before moving...

First, I didn't think SIBO went under EIM because it's intestinal, so I apologize if this is the wrong spot to post it. I looked for other threads but I didn't see anything very recent. And I didn't want to crash the parents forum, because while I am a parent, my kids don't have IBD. I...

I'm glad you made it through the appeals process, and I hope the meds help.

You said they thought your daughter had it? Did she end up having it? My insurance company won't cover the rifaximin unless it's prescribed for "IBS with diarrhea". Their bright idea is to give me amoxicillin and Align. That just sounds dumb to me. Except for the nausea, I don't feel that...

My first MRE was much easier on me. And they did find a stricture that time. I hope it's easier than you expect.

I don't have any experience with gentler methods, personally. But I can't keep the miralax- Gatorade mix down. I've tried using the sugar free Gatorade, and it makes no difference. It also takes longer to work on me. So I go on a low residue diet for a week before, and I stop eating a day...

I've heard of it but I don't know much. I found out my insurance covers the antibiotic. So that's good. No strictures or active inflammation is good news. Getting another test would probably be more trouble than taking the meds, honestly. Off to search for threads about SIBO.

I got a message from the gastro. No inflammation or active disease. Doc prescribed antibiotics for SIBO. that's new

Does MRE make most people feel horrible? I've had a MRE once before, in 2019. That was an early morning appt, this was an evening slot. I am proud of myself for keeping the Breeza down. Blech. Doc ordered the imaging because of nausea. Feeling nauseated? Here, chug 3 bottles of liquid. 🤢...

😂 right? And dropping it off in the lobby. In the sample basket. With a bunch of people sitting there. #awkward I think I've got a flare going. I'm feeling nauseated on a daily basis, the abdominal pain and urgency is ramping up. I'm due for my inflectra next week. The doc has checked...

Thanks again for taking the time to respond. I sent the GI an email, and lucky me, I picked up my plastic poop hat and sample container yesterday. 😬 He wants a calprotectin and an MRI. The past week hasn't been great. I don't know if I'd call it a flare, but I get symptoms each month when...

I don't have any experience with it, but I hope you find relief. Did you mean every couple of months? Because every couple of years, over the past 4 years, is like twice. Which is still unpleasant, but every couple of months sounds awful

Thank you. I'm sorry your son has crohn's and I'm sorry you went through that as a mom. I'm a mom, too. All 3 of my kids have asthma, and when they were elementary school age, they would all get pneumonia every 3 months. One of my sons was hospitalized for pneumonia and a partially collapsed...

I have crohn's, been diagnosed for 8 or 9 years. I've been very lucky to have avoided any major complications, so far. 2 years ago an MRI showed a stricture in the TI. Doc was able to stretch it via colonoscopy. I don't want any more strictures (because we have a choice, right?). Or scopes...

Good question. I don't know if it's cheaper, but it does carry a risk of needing surgical retrieval if it can't get all the way through, because of stricture, etc. They may start with a colonoscopy because it's easier to access. Why put you through a pill cam or MRI if they find the answer...

I agree, for the same reason. I was finally diagnosed after a pill cam. My problems so far have been limited to the small bowel. Chronic anemia. I get iron infusions every year and a half to two years when my iron stores get low.